Chicago's North Suburban Chapter

 United Ostomy Association

Highlights from The New Outlook

 

The New Outlook

 

November, 2001

 

Last Month's Meeting: 

     Even the high winds and rain could not stop over 100 people from attending our Annual Product Fair.  We had a wonderful turn out with UOA members from surrounding chapters including the DuPage Chapter attending.  The raffle with the many fine donated prizes was also a big hit.  We sincerely want to thank all the vendors and  manufacturers participating.

     We had many companies displaying their current, new and innovative products and services.  Hollister brought an interactive presentation featuring a video internet library from ostomyworld.com .   Coloplast featured new ostomy appliances along with Sween Cream, which when used with an ostomy system will relieve red and sore skin under the barrier.  The Cook company presented non-adhesive systems featuring a plastic ring that fits around the stoma.   KEM Enterprises demonstrated the Osto-EZ-Vent including the new deodorant disc that may be inserted into the vented spout.  ConvaTec had a popular booth featuring their new closed pouching systems for colostomates as well as ileostomates.  Our loyal local suppliers, Mark Drug Home Heath as well as Walgreen's displayed an entire array of products and services to enhance the quality of life for ostomates.  We also thank Cymed, Parthenon Company, New Hope and others for sending product samples for our members to try.  We truly appreciate the quality of the presentations and the personal sacrifices made by our vendors by being away from their families to participate in our fair.

     Dave Lebovitz from Walgreen's won the 50/50.  The consolation prize was awarded to Sue Sieger.  Entertainment books were on sale at a special price of $25 from Roger, and Carson Days coupons were on sale for only $5.00 from Dave.  Our Hospitality table was deliciously supplies by Joan Loyd, Mike Moneysmith, Linda Narcaroti, Gail Olson, George Rasof and Sally Schinberg.

     We hope to see all of you at our Gala Holiday Party in December.  We're going to have a great time.  See you there,

                                    Joan Boden

 

Gala Holiday Party!

 

     Please join us on Wednesday, December 12th at 6:30 p.m. at Lutheran General Hospital in the East Dining Room for our Gala Holiday Party!  Many activities are planned, including dinner, Santa’s Gift Bag (bring a $10 unisex gift and take one home), holiday music, games, and fun.

     We are also in need of people who will bring food to the Gala Holiday Party, whether it is a special holiday recipe that everyone raves about or something you enjoy shopping for.  The following types of food are needed:

 

Appetizers      Salads      Side Dishes      Main Dishes      Desserts

 

     Each dish should have about 8 – 12 servings, although more is always welcome.  Please Note: heating facilities are limited, so if you are bringing a hot dish, please bring it already heated and in an insulated container.  Also, don’t forget to bring serving utensils.

     If you would like to bring something to share, please contact Sally Schinberg at 847-364-0690 or aagrmgshow@aol.com , or Mike Moneysmith at 847-566-9132 or MikeMoneysmith@compuserve.com , and give us your name, telephone number, and what food item you would like to bring.

     This is a great time for us to celebrate the season with dinner, songs, and friends.  We look forward to seeing you at the Gala Holiday Party.

 

Friends of Ostomates Worldwide

Needs a Home and Few Good People!

 

     FOW-USA Project SHARE needs a new home.  Headquarters for receiving donations of ostomy products, sorting and re-packing them for shipment overseas has been in the Cleveland, Ohio area since 1986.  In October their donated warehouse was leased to Toys-R-Us.  We need:

     Now we  face the chicken or the egg question.  Does the warehouse come first, then look for volunteers to staff it?  Or do the volunteers come first, then try to find warehouse space?                               

     The Board of Directors decided the people are the most important part of this project.  They are asking chapters in Boston, Miami, Chicago, San Francisco, St. Louis and Minneapolis if they would be willing to sponsor Project SHARE by looking for volunteers.  If volunteers are found, then a warehouse will be searched out.

     Our Chapter has agreed to look for volunteers.  If a warehouse can be found in an area near Chicago's north suburbs, would you be a volunteer for a day or two a month?

     If you have a day or two a month and would be willing to work with this worthwhile, all volunteer effort please phone Joan Loyd at 847-724-7453 or e-mail at rjloyd@nwu.edu.   Joan will try to answer any questions you have about this project.  A list will be started and we will let you know if we succeed in earning the opportunity of winning Project SHARE for Chicago.

                                                                       

President's Message

 

     Last month our Chapter had a special event that focused on one of the most important, significant and vital contributions that we as ostomates may do for others … visit someone who is about to have or who has just had ostomy surgery.  On November 3, our Chapter sponsored a visitor training session at Lutheran General Hospital.  It was very refreshing to see many people from other chapters participate as well as our members.  This education leads to certification as a UOA visitor.

     It is one of our missions to work with people who are about to have or have had ostomy surgery by sharing our joy in having a new life.  A visit is probably the first time a person facing life with an ostomy has an opportunity to intimately discuss his/her issues, fears or concerns with someone who has actually had surgery and is optimistic about living life with an ostomy.  This action transforms the idea of living with an ostomy from something nebulous, just an imaginary idea, to something very real that one may actually visualize.

     I would like to extend my thanks to three of the people who made this training session a success with the participation of over 25 attendees … Peggy Christ, Sue Neu and Jeri Zaslavsky.

     Peggy is an experienced ET nurse who writes, lectures, trains and supports UOA nationally.  Her list of credentials alone would fill a newsletter.  She lives in Omaha, Nebraska, and traveled here specially just so she may be with us to assist in this educational program.  She added her knowledge along with a great sense of humor.

     Sue is one of the ET nurses who donates her time regularly to our Chapter.  She has made interesting and informed presentations on many occasions.  We especially appreciate Sue once again taking time from her family to come on a Saturday morning to share her knowledge and wisdom with us.

     Jeri is a member of our Chapter and serves as our Visiting Chairperson.  It is through Jeri's team that most of our visits are coordinated.   She tries to match the demographic profile of a patient with a visitor so there is the most in common between them and a rapport may be easily established.  She tackles this task with fervor and with determination.  We want to thank you Jeri for the donation you have made to our Chapter of your talent, time and caring .  We are especially grateful for sponsoring this marvelous educational experience.  

     It is primarily due to the work of these generous women that our visitor training session was so beneficial and successful.  Thank you for helping us toward our goal of fulfilling our mission of ostomy education by teaching us proven methods of offering others the enthusiastic emotional support needed when facing life with an ostomy.

                                          Dave Rudzin

 

Encouragement

 

     Two men, both seriously ill, occupied the same hospital room. One man was allowed to sit up in his bed for an hour each afternoon to help drain the fluid from his lungs. His bed was next to the room's only window.  The other man had to spend all his time flat on his back.  The men talked for hours on end. They spoke of their wives and families, their homes, their jobs, their involvement in the military service, where they had been on vacation. 

     Every afternoon when the man in the bed by the window could sit up, he would pass the time by describing to his roommate all the things he could see outside the window.  The man in the other bed began to live for those one-hour period where his world would be broadened and enlivened by all the activity and color of the world outside.

     The window overlooked a park with a lovely lake.  Ducks and swans played on the water while children sailed their model boats. Young lovers walked arm in arm amidst flowers of every color and a fine view of the city skyline could be seen in the distance.

     As the man by the window described all this in exquisite detail, the man on the other side of the room would close his eyes and imagine the picturesque scene. One warm afternoon the man by the window described a parade passing by. Although the other man couldn't hear the band - he could see it in his mind's eye as the gentleman by the window portrayed it with descriptive words.

     Days and weeks passed.  One morning, the day nurse arrived to bring water for their baths only to find the lifeless body of the man by the window, who had died peacefully in his sleep. She was saddened and called the hospital attendants to take the body away.  As soon as it seemed appropriate, the other man asked if he could be moved next to the window. The nurse was happy to make the switch,  and after making sure he was comfortable, she left him alone.

     Slowly, painfully, he propped himself up on one elbow to take his first look at the real world outside. He strained to slowly turn to look out the window beside the bed.  It faced a blank wall. The man asked the nurse what could have compelled his deceased roommate who had described such wonderful things outside this window. The nurse responded that the man was blind and could not even see the wall.  She said, "Perhaps he just wanted to encourage you."

     Epilogue: There is tremendous happiness in making others happy, despite our own situations.

Shared grief is half the sorrow, but happiness when shared, is doubled. If you want to feel rich, just count all the things you have that money can't buy. "Today is a gift, that's why it is called the present."

                                                            Contributed by Jane Michnik

 

THE CRACKED POT

 

     A water bearer in Israel had two large pots, each hung on each end of a pole, which he carried across his neck.   One of the pots had a crack in it, and while the other pot was perfect and always delivered a full portion of water at the end of the long walk from the stream to the master's house, the cracked pot arrived only half full.

     For a full two years this went on daily, with the bearer delivering only one and a half pots full of water in his master's house.  Of course, the perfect pot was proud of its accomplishments, perfect to the end for which it was made.  But the poor cracked pot was ashamed of its own imperfection, and miserable that it was able to accomplish only half of what it had been made to do.

     After two years of what the cracked pot perceived to be a bitter failure, it spoke to the water bearer one day by the stream.  "I am ashamed of myself, and I want to apologize to you."  "Why?" asked the bearer.  "What are you ashamed of?  "I have been able, for these past two years, to deliver only half my load because this crack in my side causes water to leak out all the way back to your master's house.  Because of my flaws, you have to do all of this work, and you don't get full value from your efforts," the pot said.

     The water bearer felt sorry for the old cracked pot, and in his compassion he said, "As we return to the master's house, I want you to notice the beautiful flowers along the path."

Indeed, as they went up the hill, the old cracked pot took notice of the sun warming the beautiful wild flowers on the side of the path, and this cheered it some.  But at the end of the trail, it still felt bad because it had leaked out half its load, and so again it apologized to the bearer for its failure.

     The bearer said to the pot, "Did you notice that there were flowers only on your side of your path, but not on the other pot's side?  That's because I have always known about your flaw, and I took advantage of it.  I planted flower seeds on your side of the path, and every day while we walk back from the stream, you've watered them.  For two years I have been able to pick these beautiful flowers to decorate my master's table.  Without you being just the way you are, he would not have this beauty to grace his house."

     Moral:  Each of us has our own unique flaws.  We're all cracked pots.  But it's the cracks and flaws we each have that make our lives together so very interesting and rewarding.  You've just got to take each person for what they are, and look for the good in them.  There is a lot of good out there.  There is a lot of good in you!

     Blessed are the flexible, for they shall not be bent out of shape.  Remember to appreciate all the different people in your life!  Or as I like to think of it--if it hadn't been for the crackpots in my life, it would have been pretty boring and not so interesting.

     Thank you all my crackpot friends and family.

                                                                                                Contributed by Geri Eiseman

 

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October, 2001

 

Last Month's Meeting: 

     We would like to report that despite the acts of terror against our great nation the day before, our September General Meeting met as always striving toward achievement of our important mission.

     An exceptional speaker, Dr. Theodore J. Saclarides, M.D. , professor of colon-rectal surgery at Rush University, presented state-of-the art information on cancer screening focusing on ostomy issues.  Of special interest were the groups of potential patients developing colon cancer:   High risk are those with hereditary pre-dispositions, multiple first degree family members with colon cancer before the age of 60, who usually develop the cancer earlier in life, at about age 45; Those with familial polyposis, who have a virtual 100% chance of developing cancer by age 40;  Other high-risk patients are those with ulcerative colitis or Crohn's disease with risks as high as 40% for long term disease; included also are those who upon screening have polyps larger than one cm.  Average risk include 80% of the population who through environment, eating habits or other conditions could contract colon cancer usually after age 65.

     About 140,000 cases of colon cancer are diagnosed annually, and it is the second highest cancer killer in the U.S. preceded only by lung cancer.  Colon cancer has a high probability of being diagnosed if one is regularly screened.  Colon cancer patients may have an excellent chance of obtaining a total recovery if the disease is given effective treatment in time. 

     Many tools are used for diagnosing colon cancer including occult blood screening; colonoscopy; sigmoidoscopy; lower GI's.  A new tool is now being used called a virtual colonoscopy which is a non-invasive 20-second computer reconstructed colonoscopy.

       People that had surgery one year ago should schedule a colon examination. If no adverse condition is found, the next exam should be done in another two years.  If results are again normal, an exam should be made in another three years and every five years thereafter.  Individuals in this group who are diagnosed with a re-occurring cancer have a better than 85% survival rate.     People who are considered at average risk should, beginning at age 50, have a fecal occult blood test during annual physical exams, a sigmoidoscopy every five years and a colonoscopy every 10 years.  Men who have had prostrate cancer radiation treatment or pelvic radiation, women with breast or uterine cancer, or anyone with perianal disease are also predisposed to having a higher risk of colon cancer.  Diverticulitis does not increase ones risk.

       Jeri Zavlasky  encouraged everyone to attend our Visitors Training Education Session to be held on Saturday, the 3rd of November.  An invitation to reserve a seat is included in this edition of The New Outlook. Also, see the article under the Visitor's Corner. This education is valuable to anyone with an interest in ostomy surgery.  Welcome also are health care professionals and all our friends at other chapters.  We have a world  renown speaker, Peggy Christ, presenting.

     We welcome new member Bob Cigrang to our Chapter.   He found us through our Internet site.  Frank Giorno was the lucky winner of our 50/50 Drawing.  The winner of our consolation prize was Dan Sullivan.

     Frank Giorno announced that our Chapter has 287 members.  Everyone who renews his/her membership in A-Quarter, the fall,  is requested to please mail it in early.  Our Hospitality table was deliciously supplied by Karen Budnik, Joan Loyd, Mike Moneysmith, Linda Narcaroti and Joe Pollelo. 

                                    Roger Lotnick

 

 

President's Message,

 

My Dear Fellow Members,

      As is my nature in most of my columns, I dwell on a topic and add some light touches and even humorous tidbits sprinkled about. However, this is a time when current affairs should not be taken lightly.   I would like to dedicate this column to the thousands who perished in New York City, Washington and Pennsylvania on September 11.

     They were people who were innocent victims of an absolute madman and who must be remembered by us. Whether any of us knew these people or not is not the issue. What is important is that they will be remembered.  How twisted is the world, when people thousands of miles from our home can impose their maniacal will upon us?  It just shows that we as a people have a very long way to go to earn the right to be called truly human.

      I have already made contact with a few of the UOA people who live in and just outside New York City and have verified their safety.  One of the terms used to describe many of us in UOA is survivors. Survivors of disease, accident, birth defect or cancer. It is that fighting spirit and that tenacity that we know exists in all of us, from New York City to Washington to Pennsylvania and throughout the rest of our country. We Americans are survivors. Never Again.

                                                                                    Dave Rudzin

 

Prayer For Hope...

 

God, we have not lost faith in you.

 We suffered a great tragedy

 in the United States on September 11,

 a crime against all humanity,

 and we know that this attack

 could never have been

 wrought by your loving hand.

 And we are saddened that such

 hate and anger lives in

 the hearts of men.

 Now, more than ever,

 we depend on your wisdom,

 and we hope for world peace.

 We look to you for guidance

 during this difficult time,

 and ask that you ease

 the suffering of every soul

 that was touched

 by the tragedy.

 Please continue to give

 us the strength and tenacity

 to get through this crisis.

 Send your angels to calm

 and comfort those

 who lost someone they love,

 and keep those who perished

 safe in your keeping.

 Reserve a special place in heaven

 for every heroic soul

 who lost their life

 while trying to save others,

 and send your love and healing power

 to every person who was wounded.

 But most of all, God,

 keep the spark of hope

 for better days to come

 alive in every heart.

 

 Amen

 

Friends of Ostomates Worldwide (FOW-USA)

Joan Loyd, FOW representative

 

     FOW-USA has lost the donated warehouse space in Magadore, Ohio where volunteers did the sorting, packing and shipping.  When these volunteers were given only three-weeks notice that the warehouse had to be vacated, they prepared three tons of donations for shipping.  They packed and processed supplies urgently needed to:

 

                        Uzbekistan      3 pallets                                  Argentina        2 pallets

                        Bolivia            1 pallet                                    Peru                1 pallet

                        Nepal              1 pallet                                    Russia             1 pallet

                        Rumania         1 pallet

 

     Only unmatched flanges or pouches and a pallet of literature were left to be moved.  Please  contact one of the officers of our Chapter (listed on page 2) to arrange for pick up of your donation, or just have them brought to any General Meeting until a new location is found. 

     We need new warehouse space donated for this worthy cause.  Please contact Joan Loyd at 847-724-7453.  The warehouse needs to be in the area of a major air shipping hub.

     Thank you, all of you, for your contributions and your co-operation.  Donations of ostomy supplies to those in need are just one more of the small people-to-people efforts that lets the world know the USA is concerned for the welfare of everyone … everywhere.

 

Fit For Life: Constant Craving

 

     Eating the occasional chocolate bar really isn't a sin, but if your food cravings seem to be out of control the following information may come in very useful:  Chocolate is the single most craved food in this country, especially among women.  Strict dieting can intensify cravings and experts recommend we satisfy them by eating the desired food.  Despite this and contrary to popular belief, it's unlikely our body needs the food we crave. 

     Think of a craving as a wave, they appear quickly and disappear just as soon.  Clamp down and switch your focus for fifteen minutes and you'll usually find it disappears.  Try playing one of your favorite CDs or reading a few pages from a book.  Anything will do as long as it keeps your mind off scoffing loads of chocs!  Sometimes even will power isn't enough and if you're really pining compromising becomes virtually impossible.

Help Our Chapter!

 

Entertainment 2002 Books

Books for 2002 are now being offered to raise funds for our Chapter.  Entertainment Books are on sale now for only $30 (S&H included) and provide 50% off and two for one offers at the greatest places around.  Order yours for any one of over 150 cities.  Great for gifts.  Just ask Roger Lotnick or go to our Chapter Internet site to order directly at: uoachicago.org 

 

Carson's Community Day Sale

This is a special event that takes place on November 17.  The packet contains five $10 savings certificates redeemable on this Saturday only. You may purchase an event packet for $5 from Dave Rudzin.

 

Hollister Focus Group

 

Hollister International is going to hold a focus group on Tuesday, October 23rd at their corporate headquarters in Libertyville.  They want to talk to people who use closed one-piece systems … only.  They request you arrive at 5:30 when they will hold three different topic discussions.  Dinner will be at 7:30 and each participant will be given a $50 honorarium.  It is important that we participate in these sessions.  We want the very best products, and this is our chance to tell a major manufacturer what we want.  Please contact Tammy at 847-918-5817 to make a reservation.

 

Difference Makers     

 

Can you answer these questions?:

1.    Name the five wealthiest people in the world.

2.    Name the last five Heisman trophy winners.

3.    Name the last five winners of the Miss America contest.

4.    Name ten people who have won the Nobel or Pulitzer prize.

5.    Name the last half dozen Academy Award winners for best actor and actress.

6.    Name the last decade's worth of World Series winners.

How did you do? The point is, none of us remember the headliners of yesterday. These are not second-rate achievers. They are the best in their fields. But the applause dies. Awards tarnish. Achievements are forgotten. Accolades and certificates are buried with their owners.  Here's another quiz. See how you do on this one:

1.    List a teachers who aided your journey through school.

2.    Name a friend who has helped you through a difficult time.

3.    Name a person who has taught you something worthwhile.

4.    Think of five people who have made you feel appreciated and special.

5.    Think of five people you enjoy spending time with.

6.    Name five heroes whose stories have inspired you.

Easier? The lesson? The people who make a difference in your life are not the ones with the most credentials, the most money, or the most awards. They are the ones that care. Pass this on to those people who have made a difference in your life.

 

Capsule Camera

 

Imagine swallowing a camera in a capsule the size of a vitamin pill to help doctors identify gastrointestinal problems that might otherwise go undiagnosed. That's exactly what patients at the Mayo Clinic are doing.  The capsule includes a miniature color video camera, a light, a battery, and a transmitter. The video camera transmits images to sensors attached to the patient's torso, and a Walkman-like device the patient wears around his waist records them digitally. It takes about 8 hours for the camera to make its way through the digestive tract. The device can help doctors evaluate intestinal bleeding and conditions that cause pain, diarrhea, or weight loss, such as Crohn's disease. David Fleischer, M.D., calls the procedure "the medical equivalent of space exploration of the moon."

 

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September, 2001

 

Last Month's Meeting:  We appreciate all the brave souls that attended last month's meeting and battled the miserable rainstorm getting here.  We had almost 50 participate! 

     Susan Neu, RN was our ET for the month.  She spoke about the need to re-evaluate our ostomy system with an ET on a regular basis in order to have the best quality of life.  Afterwards, she hosted a stimulating question and answer session.  Sue told us that if we wear an appliance with a more  aggressive barrier for less than three days, we need to review our use of the prosthetic and our ostomy procedures.  Each time we change our system a thin layer of skin is removed.  This is normal.  Too many changes will not give the skin a chance to heal and may cause irritation problems.  Of course, there are barriers made to be changed every few hours like those on one piece closed systems.  Colostomates who irrigate and travel should only irrigate with water that is safe to drink.  Additionally, if your doctor or local pharmacist does not have an answer to your medication questions, it was suggested to contact a pharmacy school at a university. 

     We welcome our new visitors Libby Brewer and Bill Konopacz who both had their surgeries just six weeks ago.  Amazing!  The lucky winner of our 50/50 was Dan Sullivan.  The consolation prize was awarded to Joe Peak, another first time visitor who had his surgery five years ago. 

     Frank Giorno announced that our Chapter has 287 members.  Jeri Zavlasky reported over five visits for August.  We are attempting to become more supportive of patients from the University of Chicago Hospitals.  Our Hospitality table was deliciously supplied by Karen Budnik, Joan Loyd, Mike Moneysmith, Linda Narcaroti and Clif Southerington. 

     We had many of our Chapter members go to  the 2001 UOA Conference.  Over 500 people from around the country attended.  There were many fascinating sessions on all types of subjects every day; the largest ostomy product fair in the world; a free stoma clinic with experienced ET's; new product focus groups, and social events till late at night.  On a personal note, I met a gentleman at the conference who has had his ostomy for 35 years.  He exclaimed that he made the most steadfast friends at these conferences.  He then questioned why.  I answered that we already know the most intimate detail about each other.  So there is no need to put on airs.  Our friendships can grow from then on.  Next year's conference will be held from August 14-17 in Philadelphia.  We hope to see you there. 

     We are proud to announce that our Chapter President, Dave Rudzin, was elected and sworn in on the National UOA Board of Directors.  We value his friendship and appreciate his dedication performing the important work of our organization.        Joan Boden

 

    

Dave Rudzin

UOA Board of Directors

 

     We are very proud to announce that our Chapter President, Dave Rudzin, has been elected to the United Ostomy Association-USA Board of Directors.  Dave will be working on specially assigned committees representing the needs of  tens of thousands of ostomates.  The last person to be elected to the Board from our Chapter was Marilyn Mau, who went on to become UOA-USA President and then a Regional President of UOA-International. 

     We sincerely appreciates all the sacrifice and unswerving dedication Dave has repeatedly contributed to our Chapter.  We affectionately congratulate him for attaining this honor, and continuing the tradition of leadership emanating from Chicago.

 

President's Letter:

 

    Here is an article that we hope you find as inspiring as we did titled The Music Maker:  Itzhak Perlman, the violinist, came on stage to give a concert at Avery Fisher Hall in Lincoln Center in New York City. If you have ever been to a Perlman concert, you know that getting on stage is no small achievement for him. He was stricken with polio as a child, so he has braces on both legs and walks with two crutches. To see him walk across the stage one step at a time, painfully and slowly, is an unforgettable sight. He walks painfully, yet majestically, until he reaches his chair. Then he sits down, slowly, puts his crutches on the floor, undoes the clasps on his legs, tucks one foot back and extends the other foot forward. Then he bends down, picks up his violin, puts it under his chin, nods to the conductor and proceeds to play.  By now, the audience is used to this ritual. They sit quietly while he makes his way across the stage to his chair. They remain reverently silent while he undoes the clasps on his legs. They wait until he is ready to play.

     But this time, something went wrong. Just as he finished the first few bars, one of the violin strings broke. You could hear it  snap – it went off like gunfire across the room. There was no mistaking what that sound meant. There was no mistaking what he had to do.  People who were there that night thought to themselves, "We figured that he would have to get up, put on the clasps again, pick up the crutches and limp his way off stage  either to find another violin or to find another string for this one."

     But he didn't. Instead, he waited a moment, closed his eyes and then signaled the conductor to begin again. The orchestra began, and he played from where he had left off. And he played with such passion, such power and such purity as they had never heard before. Of  course, everyone knows it is impossible to play a symphonic work with just three strings. I know that, and you know that, but that night Itzhak Perlman refused to know that.

     You could see him modulating, changing, recomposing the piece in his head. At one point, it sounded like he was de-tuning the strings to get new sounds from them that they had never made before. When he finished, there was an awed silence in the room. And then people rose and cheered. There was an extraordinary outburst of applause from every corner of the auditorium. We were all on our feet, screaming and cheering, doing everything we could to show how much we appreciated what he had done.  He smiled, wiped the sweat from his brow, raised his bow to quiet us, and then he said, not boastfully, but in a quiet, pensive, reverent tone, "You know, sometimes it is the artist's task to find out how much music you can still make with what you have left."

     What a powerful line that is. It has stayed in my mind ever since I heard it. And who knows? Perhaps that is the true goal of life – not just for artists but for all of us.  So, perhaps our task in this shaky, fast-changing, bewildering world in which we live is to make music, at first with all that we have, and then, when that is no longer possible, to make music with what we have left.  Jack Riemer, Houston Chronicle

 

A Fruit's Hue Colors Its Nutritional Value

 

The next time you walk down the produce aisle, let color be your guide: the more intense the pigment of a fruit or

vegetable, the richer it is in health-promoting compounds. blueberries, blackberries, and strawberries pack the

highest nutritional wallop, says Dr. Luke Howard, professor of food science. They owe their vivid colors to

generous portions of cancer-fighting pigments. As a bonus, blackberries and strawberries also contain vitamin C.

Deep green vegetables like spinach and broccoli also score high in the nutrition game, but even pale vegetables like onions contain pigments that protect against heart disease. They've also been shown to lower cholesterol and maintain a healthy immune system. Here again though, color counts: red and yellow onions have more nutrients than white ones. The same holds true for tomatoes: they get their scarlet color from lycopene, which may protect against prostate cancer, and the redder they are, the more lycopene they have.

 

 

Tea Maintains Healthy Arteries

 

Black tea consumption has been associated with maintaining healthy arteries in people with a history of heart disease, say the authors of a study published by the American Heart Association. They found that black tea promotes activity of the endothelium, or inner lining of the blood vessels. A healthy endothelium allows blood vessels to expand or contract in response to minute-by-minute changes in the need for blood flow, and it inhibits the formation of blood clots and the development of inflammation in the vessel wall, all of which are often impaired in people with arteriosclerosis. In this study, researchers compared the immediate and longer-term effects of black tea to water consumption on the arteries of 50people with coronary artery disease, and found that

only the tea improved arterial function. Senior author Dr. Joseph Vita says these findings suggest that black tea may help reverse arterial dysfunction and could reduce the risk of heart attacks.

 

High on HDL

 

When it comes to cholesterol, having enough of the good stuff could be an important risk reducer for stroke.  According to recent research, having HDL (good) cholesterol levels above 35 mg/dl may reduce your risk of stroke by as much as 50%. To help keep your HDL levels high, engage regularly in cardiovascular exercise and choose mono unsaturated fats instead of saturated fats in your diet.  Real age Benefit: Reducing your total cholesterol to 160 mg/dl or lower can make your "real age" as much as one year younger.

 

 

 

 

 

 

Foods That Help Fight Cancer

by Beth Gilbert

     "Eat your vegetables – they're good for you!" How many times did we hear that when we were growing up? Could it be that our mothers were actually on to something?

     Most definitely, yes, researchers say. And if your mom also pushed you to eat fruit, legumes (dried peas and beans), whole grains, nuts and seeds, she was a true cancer prevention visionary. Medical experts now say these plant-based foods contain chemicals that may help protect us from getting cancer. They believe the vitamins, minerals, phytochemicals and antioxidants these foods contain may protect our cells from damage caused by cancer-causing substances.

     "Quite simply, what we put in our mouths can give us an edge in protecting ourselves from developing cancer," says Cindy Moore, M.S., a spokesperson for the American Dietetic Association. "The most important thing – as a means to preventing cancer – is to eat a variety of healthy foods. I know that idea is old hat, but it's still true. Being well-nourished enhances our body's immune system and energy stores. It also keeps tissues from breaking down and helps to rebuild them.

     "Different foods also provide the different nutrients our bodies need for good health," she says. "And while it's important to incorporate proteins – meat, fish, poultry, eggs and soybeans – as a key component in our diet, there's strong evidence that a diet that's rich in a variety of plant-based foods can help protect us against cancer.

     In fact, in a recent report, researchers determined if the only positive change we make is to eat five servings of fruits and vegetables each day, we may be able to lower our risk for cancer by 20 percent. In addition, if we eat those fruits and vegetables, exercise regularly and maintain a healthy weight, we may lower that risk by 40 percent. 

 

Seven Simple Tips to Help Lower Your Risk for Cancer

 

The American Institute for Cancer Research offers the following guidelines and ammunition in our on-going battle to prevent cancer:

·         Choose a diet that's rich in a variety of plant-based foods.

·         Eat plenty of fruits and vegetables.

·         Maintain a healthy weight and be physically active.

·         Drink alcohol in moderation – if at all. They recommend a maximum of two

               alcoholic drinks per day for men and one for women.

·         Eat foods low in fat and salt.

·         Prepare and store food safely.

·         Do not use tobacco in any form.

For more information about diet, nutrition and cancer prevention, log on to the Web site of the American Institute for Cancer Research at www.aicr.org.

 

 

New Site Explains Lab Test Results

 

If you've ever been stumped by all those numbers on a lab printout, you'll want to check out www.labtestonline.org, a site designed to provide consumers with news and easy-to-understand information on a comprehensive array of lab tests and topics. Larry Kricka, president of the

American Association for Clinical Chemistry, says it will provide the public with reliable information "about the tests ordered by their doctors to diagnose, treat, or prevent disease."  Upon choosing a lab test from the comprehensive list provided, the viewer will receive understandable explanations about the test, the testing process, and the meaning of their own lab results. The site is reviewed by experts and has been produced through a collaboration among six of the most prestigious societies in the field of clinical chemistry. Dr. David Sundwall, president of the American Clinical Laboratory Association, described Lab Tests Online as "one-stop shopping for consumers who want to better understand the many clinical lab tests that are part of routine health care."

 

 

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August, 2001

 

Last Month's Meeting:  For July, we welcomed our new visitors and our loyal regular members to the 289th meeting of CNSC UOA.  Karen wanted to expand our program offering, increase the depth of subject and provide stimulating information about the current state of ostomy products.  Along with one of our new members, Michael Cherry, an engineer in product development at Hollister International, Jeff Bark, the Global Ostomy Product Development Manager came to talk with us.  They made an exciting presentation dramatizing the commitment Hollister is continuing to make in manufacturing excellence; research and development; distribution; customer service; education, and accessibility.  Jeff also brought colorful brochures and a film telling a brief history of Hollister.  Jeff reaffirmed the continuing mission in which Hollister is dedicated so ostomates may have a better quality of life.  An interesting fact Jeff shared was that the U.S. ostomy market continues to expand although the increase seems to be in temporary ostomies and fortunately not permanent ones.  They want us to know that "Together we make a difference".

     Frank Giorno announced that our Chapter has 285 active members.  Jeri Zavlasky, by proxy, reported over six visits for the past month.  We are getting more requests for visits each month.  Special approbation was given to Gerry Eiseman.  Her article published in The Ostomy Quarterly is a big sensation across the country.  Thank you Gerry for generously sharing your thoughts and feelings with us.  

    The winner of our 50/50 was Roger Lotnick with the consolation prize awarded to one of our regulars, Clif Southerington.  We had a tasty Hospitality table generously supplied by Karen Budnik, Helen Lande, Joan Loyd, Jane Michnik, Linda Narcaroti, George Rasof and Clif Southerington.

     We have an exciting calendar for the second half of the year.  A lot of caring and dedication is being expended to have the very best and the most interesting programs and events for you to attend.  Our programs are provided at no charge, although they are not free.  We have world class presenters who generously give the insight and knowledge gained over a career so that we may have a better life.  They take time away from their families to visit us.  We can say with confidence, they truly have the best of intentions and pure intent.  See you in August,

                          Renard

 

Calendar

Meetings for 2001:

The fourth Wednesday of every month.

(except where highlighted)

 

August 22 

Kim Kirchherr, MS, RD, LD, CDE a registered dietician from Alexian Brothers Medical Center will be our featured speaker discussing healthy eating for a long, active life.  Special attention will be focused upon ostomates.  In addition, Susan Neu, RN will be our ET of the month.  Highlights from the UOA Convention will also be featured.

           

September 12 (Special Date)

Theodore J. Saclarides, M.D., Associate Professor of Surgery, Head – Section of Colon & Rectal Surgery, Rush-Presbyterian –St. Luke's Medical Center, Chicago will be presenting State-of-the-Art information on surgical options.  A Q&A session will follow.  Helena DeMoss from Mercy Center in Aurora will be our ET this evening.

 

October 24 (Ostomy Product Fair)

This year we will again be featuring exhibits from leading ostomy manufactures and suppliers.  This is one our biggest events with over 100 in attendance.

 

November 4 (Visitor's Training)

This event is scheduled from 9:00 a.m. until 2:00 p.m. in the 10th floor Dining Room at Lutheran General with speakers from around the country.  Because of the incredible amount of planning and preparation associated with the workshop it is only offered every few years.  We invite neighboring Chapters to attend.

 

November 17 (CCFA Conference)

The 7th annual Patient and Family conference will again be held starting at 9:00 a.m. at the Stephens  Convention Center, Rosemont.  We sponsor a booth and give a presentation on living with an ostomy.

 

December 12  (Gala Holiday Party) 

This is a great time for us to celebrate the season with dinner, songs and friends.

 

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July, 2001

 

Last Month’s Meeting:   We had the biggest turnout out the year, about 70 people for our June General Meeting.  Our featured speaker was Barabra Saltzman, M.A., L.C.P.C., a psychotherapist.  She has a private practice in Lincolnwood, and has been associated with the Kenneth Young Center in Elk Grove Village.  Her topic was “Coping with Chronic Illness”.  She went through the different stages of loss, and the changes that we can make to finally achieve acceptance.  She amplified the importance we are all lovable even though we are going through major changes in our lives.  Support groups like ours are very helpful to people in working through these issues in order to live a happier life.  The one phrase she repeated was, “We cannot control change but we can control our response to it."  Many of our members enjoyed her speech, and we hope to have Dr. Saltzman return.  Bari Stiehr, ET, recently attended an ostomy nursing seminar, and brought in some of the new appliances.  One of them, a drainable pouch, did not use a separate clip.  It had one integrated in the pouch thus making it impossible for the clip to fall off.

      Frank Giorno stated we have 297 active members.  Tim Traznik reported that we raised $3,363 in donations from our annual fundraiser.  Jeri Zaslavsky told us about a male patient who just a few weeks ago was fitted with a urostomy appliance by floor nurses after having ileostomy surgery.  The regular ET for the hospital was out of town.  Fortunately, his daughter retrieved the phone number for our Chapter Visiting Team.  Jeri took the call and recommended another ET nurse from a different hospital.  The ET was called, and then immediately made a house call to manage this issue. The patient is now doing quite well.  The point of all this, and the important thing to remember is that an ostomate may use any ET nurse he/she prefers.  We are not required to stay with the ET nurse where we had our surgery.  We have a choice.  Don't settle.

     The winner of the 50/50 was Jeri Zaslavsky.  Jeri has been here four years, and won for the very first time. The consolation prize went to Debra Dion, who was a first time visitor.  Our Hospitality Table was filled with all kinds of delicious treats supplied by Diane Breckenridge, Joan Loyd,  Jim Madsen, Mike Moneysmith, Linda Narcaroti and Lutheran General Hospital.  A special note recognizing Jane Michnik, who celebrated her 25th wedding anniversary tonight, and to Fred Shulak, who commemorates the 45th anniversary of his surgery.

      Our Internet site has been visited 4137 times in 2001.  Half by new visitors and half by repeat visitors.   Can I wear blue jeans after surgery? is the most popular subject.  Our next General Meeting will be on Wednesday, July 25 at 7:00 p.m.  Hope to see you there,

         Joan Boden

 

President's Letter:

 

Dear Members,

 

    Our National Convention will begin on August 8.  I strongly urge each and every one of you to seriously consider attending this year's Conference to be held at the Radisson in St. Paul, MN.  In Chicago, we are fortunate, the last two Conferences have been located relatively close to us. The previous one in St. Louis and this one in St. Paul.  We learn about cutting edge technologies in ostomy management, as well as hear many excellent presentations from top medical professionals, and besides, we have lots of smiles. Chicago has a fun group that goes.  This is a personal invitation to everyone in our Chapter to join us.

    As you know, there have been many changes this year in UOA , e.g. the way decisions are made at national UOA; the Legacy fundraising programs; challenges in maintaining growth; the success of an advocacy program to increase the Medicare allowance on supplies.  We have a dedicated group of individuals working tirelessly to achieve the goals we set.  We want to continue to bring all the various groups, like colostomates and ileostomates, together under one umbrella.  We want to continue to band together and stand tall as a strong organization ready to lend emotional support, education and advocacy for all people going through any of the various ostomy or continent procedures.

    I will not be at the July General Meeting. In my place, Vice President Karen Budnik will do what I am sure is a fabulous job in putting on an excellent program. I will be at the 2001Youth Rally in San Diego, hopefully gaining knowledge into the needs of today's young ostomate.  For example, we have found that some do not to stay active within UOA after 19 years old, the age limit on Youth Rally attendees.  My goal is to bridge the gap with the teenagers, and make them aware that we in UOA need their continued participation.  We are evolving groups like 20/40 to address the special needs and concerns of these adults.  Upon my return, I will give you all a full report of the events from the Youth Rally, and present my assessment of the success of UOA programs and communications in attending to the needs our young ostomates.

Dave Rudzin

 

What's behind a Belly Button

An age old question has finally been revealed.  Dr. Peter Marcello, a colon and rectal surgeon, indicated that there is mostly nothing but a few stringy things attached to the inside of a belly button.  However, at the last Northwest Medical Group meeting, a much more interesting theory was put forward.  Dr. Carl Stephens indicated that the belly button was connected to the butt.  Furthermore, if the belly button was unbuttoned, the butt would fall off.

via Niagara Frontier Ostomy Association

 

Carrots Lower Cholesterol

Certain vegetable fibers have the ability to bind bile and thus lower cholesterol.  Bile acids, which are made from cholesterol, are normally absorbed by the body, yet not completely.  Any unabsorbed residuals are used by the body to make more cholesterol.  Carrots contain calcium pectate, which is a binding agent for the bile acids.  Its binding action prevents the body from manufacturing additional cholesterol, thus lowering the cholesterol level.  We are being told that two carrots a day may lower cholesterol 10-20 percent.  Broccoli and cabbage may have similar characteristics.

via South Nevada Town Karaya

 

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 June, 2001

 

Last Month's Meeting:  On a beautiful spring day in Chicago, we began our 27th year as a Chapter.  We were fortunate to have Ginny Kasten, a Director for UOA, and a resident of Glen Ellyn, install our Officers for 2001.  Ginny also presented an overview of the key issues and current projects being implemented at UOA.  She was enthusiastic about  reviewing the benefits of belonging to UOA, such as the advocacy program that effectively lead to the doubling of the allotment of supplies reimbursed by Medicare in 2000; the education programs being updated and developed to include cutting edge technological changes and prevailing sociological trends; the updated, new and improved, Internet site, etc.  Frank Giorno reported that we continue to have about 300 members on our Chapter roster.  Jeri Zaslavsky expressed her thanks to all the new volunteers for our visitors program.  We have a very active program, and when we see the generosity of people willing to share their own private and personal feelings and experiences through that difficult period surrounding surgery, it is an inspiration to us all.  Jeri told us that she is arranging a Certified Visitors Training Program on Saturday, November 3.  It has been two years since we had this session, and Jeri is looking forward to putting this next one together.  CCFA is holding their annual Chicago Convention on Saturday, November 17 in Rosemont.  Over 600 people attend.  This will be our Chapter's third year as an active participant.  We'll have details about this and our visitors training as these dates approach.      

     The lucky winner of our 50/50 drawing was first timer, Jim Kruger.  Jim just had surgery a few weeks earlier, and he looked great.  Our consolation prize was presented to one of our familiar members, Helen Lande.  As always, we had many generous donations to our Hospitality Table.  A special thank you to Diane Breckenridge, Lois Knaack, Helen Lande, Mike Moneysmith and Linda Narcaroti for providing treats for us to share. 

     We have a new Internet address which makes our Chapter easier to find.  It is www.uoachicago.org.  The old two addresses we have been using will still work as well as all current links from other sites.  We actually now have three ways to come to our site.  

            Renard

 

 

President's Letter:

 

Dear Members,

         Now that the new board has been installed, I would like to state that we are here for you, our Chapter's members. We want to present programs that you find interesting, entertaining and educational.  Please help us by letting us know if there are any specific programs or issues that you would like addressed, or resources that you may have available for us.

         I would also like to extend the thanks of the Chapter to Ginnie Kasten for donating her time and talent to perform our Installation Ceremony. Ginnie, we thank you and appreciate your participation and your inspirational speech.

        Now, I would like to extend a huge thank you to everyone out there, our members, and others on our mailing list for participating in our Annual Fundraiser.  Due to your efforts, we have been able to raise in excess of $ 3,000, which will go a long way to fund various Chapter programs. I applaud all of you who contributed, in whatever capacity.  All of your efforts are appreciated.  I also want to take this opportunity to thank each and every one of you who have stepped forward in the past to help our Chapter both financially or as a volunteer.  We should tell you more often how much you are appreciated.

       Summer is almost upon us, and our National Conference is only a few weeks away.  For information regarding the Conference, please check the UOA website at www.uoa.org, or call one of the Chapter officers for details. We encourage all who are able to attend. It will be an educational, enjoyable and enlightening time, both for those who have attended previously, and for first timers. This year's Conference is being held in St. Paul, Minnesota.  So, for those of you who like shopping, there is a tour planned for Mall of the Americas.

    As you can see, the UOA Convention wants to provide something of interest for everyone, which is exactly what we hope to do in our Chapter. We try to appeal to all ostomates, and discuss openly issues that effect us. We hope to present the most interesting and relevant.  We will continually strive to achieve higher levels of performance.  Thank you for the support of our good work.

                                                                Dave Rudzin

 

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May, 2001

 

Last Month's Meeting:  Today we celebrated the 26th anniversary of the birth of our Chapter.  Our program included a presentation by Jennifer Dore, ET, and an ostomy trivia contest hosted by Karen Budnik.  Included were reports by Frank Giorno that stated we have over 300 dues paying members in the Chapter, while Jeri Zaslavsky told us about the continued success of our ostomy visitors program.  The Albert C. Sarno award was presented.  Article included separately.

     Jennifer talked about issues relating to appliance seal.  The three biggest challenges may involve irregularities in the skin contour around the stoma, the actual design of the manufactured stoma by the surgeon and the site of the stoma.  The irregularities, like scars, folds or indentations on your skin, may successfully be managed by using a paste or one of the newer seals, e.g. Eakin or Hollister seals,  to obtain a smooth, even surface on which to apply the barrier.  A smooth surface will translate into a more effective seal on the pouch.  In addition, she gave us hints on how to achieve excellent wear time, avoid leakage problems and obtain satisfactory results from our ostomy system by: Only placing the wafer on dry, clean skin; Emptying the pouch when 1/3 full; Being careful about aggressively rinsing out a pouch while it is attached to our skin; Changing our system at least once per week.  She mentioned how perspiration due to summer heat or strenuous exercise may shorten wear time.  Convex wafers may be an option for those having leakage issues, but this decision should be made jointly with an ET upon physical examination of the stoma site.  As always, Jennifer was available afterwards for personal consultations. 

     Karen put together a little game of ostomy trivia so we may learn about different issues while we participate as a group.  For instance, one question with an answer provided by Hollister was, "How many ostomates are in the Chicago Metropolitan area?"  Answer: ~ 10,000.  She had prizes for everyone answering questions.        

     The winner of our 50/50 drawing was Helen Lande with the consolation prize awarded to Mike Moneysmith.  As part of our celebration, the  Chapter provides a special anniversary cake along with coffee for all to enjoy.  In addition, other items for our Hospitality Table were provided by Frank Giorno, Ron Gould, Gerry Kuntz, Helen Laude, Mike Moneysmith and Clif Southerington.   Next month's meeting begins our 27th year as a Chapter, and it will include the installation of our officers for 2001.   

            Renard

 

                                                      

Albert C. Sarno Award

By:  Renard Narcaroti

     Every April, at our Anniversary Celebration, our Chapter presents the Albert C. Sarno award for outstanding service.  This year, I am fortunate to have been selected for this honor.  

     Two year's ago, I attended my first meeting, it was my birthday.  I had been diagnosed with ulcerative colitis.  Like a candle lit at both ends, the UC and  drug therapy were burning me up.  Surgery was the only viable option. 

     My wife Linda and I came here to learn about life with an ileostomy.  We met wonderful, normal, beautiful people, who were all very positive about having a new life after surgery.  We sat with Dave who carefully demonstrated the use of the prosthetic.  It was smaller than I had imagined.  I scheduled surgery, had it performed at Rush in June, with relatively minor difficulties and complications. 

     The Chapter became an important resource to me.  Of course, there was the ability to share successes and experiences with others like myself, the outstanding speakers who share their insights, the ETs etc., but there was more.  I always felt better after going to an event.  There was an opportunity to join the Board; manage our Internet site, travel to St. Louis with a group of friends and attend a UOA convention; participate in Gladbagger's events; visit manufacturers; attend focus groups, and represent UOA at CCFA.  It has all been great fun. 

     I am very grateful and surprised to be presented this award.  Two years ago, I was pretty sure the best of my life was behind me.  Today, it has never been better, and I expect the best yet to come.  Thank you, all my friends, for your support, and the privilege you have granted me to share an active role in the important work of UOA. 

 

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April, 2001

 

Last Month's Meeting:  Spring is here.  Well, a Chicago spring anyway with temperatures around 15°, cloudy and wet.  Our meeting featured encore presentations by Bernie Bailey, ET, and Earl Sternfeld, RPh.  Bernie discussed the importance of a pre-surgical assessment by an ET in order to have  the optimal placement for your stoma.  She dramatized a case where a patient had a poorly located stoma resulting in constant leakage from the prosthetic.  In addition, she had many other complications including issues resulting from a large weight loss.  Finally,  the stoma was surgically revised, and the management problems stopped.  Bernie stated clearly that we are not to settle for mediocre ostomy quality.  If we have issues, we need to see our doctor and ET for alternatives and solutions.  Our concerns are important.  Expect the best from your new life. 

     Earl made an informative presentation on the benefits of vitamins and  herbal remedies.  He explained how all people having ostomy surgery should be on a program of nutritional supplements.  As with all medicines, it is important to avoid self medication.  Our doctors can advise us as to our particular needs.  They use blood tests and scientific evaluation to determine the best vitamins for us, and the methods for taking them. e.g. Some people with Crohn's disease or with parts of the terminal ileum removed must receive certain vitamins, like B12, through injection in order to avoid a deficiency.  Earl and Bernie stayed after the meeting to talk to us and address personal concerns.  It is inspiring to think that medical professionals take time from their personal lives and  volunteer to speak at our meetings.  Our Chapter is fortunate to have them.  They are a valuable resource.   

     The winner of our 50/50 drawing was first timer John Bzdusek.  He had surgery six months ago and had just discovered our Chapter.  The consolation prize went to Karen Budnik.  Our Hospitality table was once again well supplied.  A thank you to Joan Loyd, Mike Moneysmith, Linda Narcaroti, Hank Schneider, Dan Sullivan and Jeri Zaslavsky for their thoughtfulness.  We are having a Gladbagger's event on April 20, and our 26th Anniversary celebration April 25.  I hope to see you there.   

            Renard

 

 

 

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Watch your mail box!  Our annual fund raising letter will be arriving soon.  Of the $30.00 annual dues each of us pays, $17.50 goes to the National UOA.  They publish the Ostomy Quarterly (OQ), maintain the national office, pay the national staff, and conduct the annual convention.  The remaining $12.50 is used by our chapter. 

 

Our major expense is the New Outlook which costs over $6000 per year to print and mail.  (The news gathering is all volunteer.)  We pay Lutheran General for the coffee for our meetings.  (They provide the room and the microphone free of charge.)  The dues will not cover all our expenses and let us send delegates to the National Convention and maintain our quality visiting program. 

 

Each year we ask each member for an extra donation to our chapter to help us maintain the quality programs we have undertaken for the benefit of ostomates in our area.  Please give as freely as you are able.

 

If you have friends, neighbors, family members who would like to help sponsor our program, send their name and address to our president, David Rudzin.  He will send them a fund raising letter.

 

Our mailing list is private.  These names (your name) will not end up on any other mailing list as a result of participation in our chapter and its activities.

 

Hollister Party on March 24

Hollister hosted a terrific day for us.  Over 150 people attended.  Over 30 of our Chapter members came and the rest were from Wisconsin Chapters.  We toured the headquarters building, got to visit their new Web site, saw machinery that stamps and molds new products, got free samples of Hollister Ostomy supplies and had an excellent lunch.  Next time they invite us, be sure you are on the list of those attending!

 

 

Friends of Ostomates Worldwide (FOW-USA)

by Joan Loyd, FOW representative

 

Do you have unused ostomy products that are surplus to your needs?  Other ostomates can use them.  We have a table of supplies at each meeting that are free for the taking.  The remainder are shipped to Friends of Ostomates Worldwide

(FOW ) where they are collected and shipped to ostomates in countries with developing economies.

 

If you live in the Chicago area, contact Joan Loyd (847-724-7453) and she will try to arrange pick up of your supplies.  If you live outside the Chicago area, you may send your supplies directly to:

 

FOW-USA Project SHARE

[COMMENT1] % Gilchrist Polymer Center, BLDG. # 3

Mogadore, Ohio 44260-1245

 

Include your name and address.  You will receive a Thank You letter which can be used for tax deduction purposes.

Your donated ostomy supplies are greatly appreciated, regardless of which donation route you choose.

This month we got a large donation from Patrick at Mark Drug.  Thank you, Patrick!

................................

 

 

A Guide to Hospitalization for the Ostomate

Dr. Lindsay Bard, Chicago, IL, via The Courier (Mission Ostomy Chapter of Tucson) and the GLO Contact

 

It is important that you as an ostomate know you should be handled differently as a hospitalized patient than non-ostomates.  It's up to you and very important to communicate to medical personnel who take care of you (including every physician who treats you) that you have an ostomy and what type.  Here are some rules to help you cover the details.

 

Rule 1: The Cardinal Rule

 

If you feel something is being done to you that might be harmful, refuse the procedure.  Then explain your special situation to the personnel, especially the physician.

 

Rule 2: Supplies

 

Bring your own supplies to the hospital.  Never assume the hospital will have the exact pouches of the irrigation systems you use.

 

Rule 3: Laxatives and Irrigations


 

Follow the points following concerning laxatives or irrigation practices, according to the type of ostomy you have.  Medical personnel often assume all stomas are colostomies, but practices vary among types of ostomies

 

!                   A transverse colostomy cannot be managed by daily irrigations.  The only colostomy that can be managed by irrigations is the descending or sigmoid colostomy.  But sigmoid or low colostomies do not have to be irrigated in order for them to function; many sigmoid colostomates prefer letting the stomas work as nature dictates.  If you do not irrigate your colostomy, let the fact be known to your caregivers.  If your physician orders your bowels cleaned, irrigate your own colostomy; do not rely on others.  There is a strong possibility that those caring for you will not know how to perform an irrigation.

 

!                   Bring your own irrigation set to the hospital.

 

!                   If you have an ileostomy or urinary diversion ostomy, never allow a stomal irrigation as a surgical or x-ray preparation.

 

!                   Remember that laxatives or cathartics by mouth can be troublesome for colostomates.  For ileostomates, they can be disastrous; ileostomates should always refuse them.  An ileostomate will have diarrhea, may become dehydrated and go into electrolyte imbalance.  The only prep an ileostomate needs is to stop eating and drinking by midnight the night before surgery.  An IV should be started the night before surgery to prevent dehydration.

 

Rule 4: X-Rays

 

X-rays present special problems for ostomates, again differently according to ostomy type.

 

!                   Colostomates: Never allow radiology technicians to introduce barium into your stomas with a rectal tube.  It is too large and rigid.  Take your irrigation set with you to x-ray and explain to the technicians that a soft rubber or plastic catheter should be used to enter the stoma.  Put a transparent bag on before going to x-ray.  Have the technician or yourself place the rubber or plastic catheter into your stoma through the clear plastic bag.  When enough barium is in your large bowl for the x-ray, the rubber or plastic catheter can be withdrawn and the open end of the bag closed.  The bag will then collect the barium as it is expelled and can be emptied neatly after the procedure.  Once the x-rays are complete, irrigate normally to clean the remaining barium from your colon.  This will prevent having to take laxatives by mouth after the procedure.

 

!                   An Ileostomate may drink barium for an x-ray procedure, but never allow anyone to put barium into your ostomy.

 


!                   A Urostomate can have normal GI x-rays without any problems.  Never allow anyone to put barium in you stoma. At times, dye may be injected through a soft plastic catheter into a urostomy for retrograde ureter and renal studies, also called an ileo-loop (loopgram) study.  The same study may be performed on a urostomate with a Koch pouch.  The dye will be injected via a large syringe.  This can be a very painful procedure if the dye is not injected very slowly.  Even 50cc injected very rapidly will create a great deal of pressure in the ureters and kidneys.  Remember to request that the injection be done very slowly.

 

An ostomate wearing a two-piece system can remove the pouch just prior to the insertion of the catheter and replace the pouch after the procedure is completed.  If you wear a one-piece system, bring another with you the x-ray department to replace the one removed for the procedure.  In the event you are incapacitated from using both hands to replace your ostomy system, have the ostomy nurse paged B or a nurse from your floor B to assist in replacing the system before you leave the x-ray department.

 

Rule 5: Instructions

 

Bring to the hospital two copies of instructions for changing and irrigating your ostomy.  Give one to your nurse for your chart and keep one with your supplies at bedside.  If you bring supplies that are not disposable, mark them DO NOT DISPOSE, otherwise you may lose them.

 

Rule 6: Communicate

 

Again let me stress that you communicate with the hospital personnel who take care of you.  You will have a better hospitalization and they will better be able to treat you.

.....................................

Controlling Alkaline Urine

by Gene Galindo

 

Mr. Galindo, who writes Ostomy Observations@ for Nu-Hope Laboratories, may be reached at P.O. Box 331150, Pacoima, CA 91333-1150 or (818)800-7711.  If there is an Ostomy Observation you would like discussed, let him know.

 

Odorous urine is usually caused by a high alkaline condition created by bacteria in the urine.  Irrigation of the pouch with a solution of water and vinegar will help but will not correct alkaline urine coming from the stoma.  The more bacteria present in the urine, the higher and stronger become the alkaline condition and odor.  Incidentally, it only takes 20 to 30 minutes for the bacteria to double its count in the pouch.

 

Indications of alkaline urine: Usually it has a darker yellow color.  Sometimes calcium deposits can be seen on the appliance or skin.

 

Additional problems caused by this condition:  1. Irritated skin pebbled with what appear to be tiny warts.  2. Closing of stoma opening.  3. Tendency of stoma to bleed easily.  4. Calcium deposits that collect inside the appliance opposite the opening (these can scratch and cause the stoma to bleed.)

 


How to test urine for alkaline level: The best way to do this is with Nitrazine Paper.  If you do not already have a Nitrazine Test Packet, you can secure this handy inexpensive Squibb item from your pharmacist.  (It is a useful addition to keep in your medicine cabinet or first aid kit.)

 

Take a fresh sample of the urine.  Do not use the Nitrazine Paper in direct contact with the stoma or take urine that has been in the pouch.  Dip the end of a small strip of the test paper in the urine and shake off any excess fluid.  You will see a change of color occur in the dipped paper.  Compare this color immediately against the Color Scale of the Paper Dispenser.  Avoid color comparison in fluorescent light B daylight or incandescent light.

 

When the color of your test sample corresponds to the purple-blue end of the color Scale (above 6.5pH) the alkaline level is above normal.  This alkaline condition may indicate a urinary infection.  It is important to check with your doctor.  It may very often be only a simple matter of body chemistry that is easily corrected by a change of diet or an antibiotic prescribed by your doctor.

 

Tips for good body chemistry: If a slight overbalance of alkali is indicated, Vitamin C (ascorbic acid) may do the job.  The dosage depends on how alkaline the urine is.  Two to four grams of Vitamin C per day may be taken for a week, backing off to about 500 mg. to one gram per day as a regular maintenance dosage.

 

Adding cranberry juice to your diet may also help balance the urine chemistry if it is not too heavily alkaline.  Sufficient daily intake of water is always important (in hard water regions distilled water may be recommended).

 

Treatment for skin irritation: Use soft cloths to apply soaks with a 50/50 solution of warm water and distilled white vinegar.  Apply gently to affected area for 10 to 15 minutes.  This will remove calcium deposits and help neutralize any ph imbalance of contacting urine.  Allow warm air to circulate over the area (sunlight or heat from a 60-watt lamp held about 12 inches from skin will provide the preferred temperature).

 

Check for leakage around stoma at appliance base plate:  Make sure that the appliance opening closely matches the stoma size.  If not, re-adjust this opening size.

 

If a skin irritation continues: Consult your Enterostomal Therapist and he or she will suggest additional treatment to meet your individual needs.

 

Maintain proper appliance hygiene: It is good hygiene to irrigate the pouch daily with a 50/50 solution of warm water and distilled white vinegar.  A deodorant may then be used in the pouch.  However, keep in mind that the use of a deodorant B while providing a pleasant scent B should not be misconstrued as a solution to a continuing urine odor.  When the infection or body chemistry conditions are corrected, a few drops of deodorant can be added to the pouch daily after irrigation.

 

There are several excellent deodorants formulated especially for ostomy use.  You can select the one you find most effective and pleasing to you.


These simple health habits and hygiene hints will keep you fresh and worry free.

..............................

Better Care for Less

from The Health Promotion and Wellness Newsletter, American Health Products via Karen Budnik

 

An aging population and a double digit increase in prescription are just two reasons the cost of health care continues to rise.  But you don't have to take it lying down.  Here's how to control your health care spending and still get great care:

 

1.  Find a primary care doctor if you don't already have one.  A primary care physician can save you money in the long run by getting to know you as well as your family's medical history, ultimately delivering better diagnoses and treatment.

 

2.  Handle minor problems by calling your doctor for self-care advice.  I may save you a visit, since many common symptoms can be handled over the phone (or in some cases, by e-mail).

 

3.  Save 30 to 50 percent off brand name drugs by asking your doctor or pharmacist about availability of generic versions for any medicines you take.

 

4.  Get critical screenings for free by taking advantage of blood pressure and cholesterol testing at local health fairs.  Note that the automated machines typically used give ballpark figures only.  Doctors= offices generally perform blood pressure readings for free also.

 

5.  Follow your doctor's directions to the letter.  A large percentage of people readmitted to hospitals soon after discharge come back only because they did not follow doctor's orders.  Be sure you understand what the orders are ...ask questions  ...know why you are taking any prescribed drugs ...ask your pharmacist for a printout of side effects.

 

AND DON'T FORGET...

Quit Smoking ... Drink less Alcohol ... Eat Right ... Exercise ... Wear Safety Belts

These moves cost you little while adding years to your life.  Now that's a bargain!

 

*************************

 

March, 2001

 

Last Month's Meeting:  We had a nice turnout for our February General Meeting.  There were plenty of new faces along with friendly familiar ones.  At each meeting, we feature an ET nursing professional who always gives us some up-to-date information on ostomy management. It was an honor to have Connie Kelly, RN, MS, as our WOCN for the evening.  She asked and answered common questions all people with ostomies should know.  e.g. If you are going to a doctor or hospital, should you bring your own supplies or expect them to have supplies available?  Of course, the prudent action is to bring ample supplies of your own.  She gave us some other new tips and was available for personal consultation as well.

     Our featured speaker was Joan Loyd, Secretary of Friends of Ostomates Worldwide, and our past President.  She presented a slide show giving an overview of the good work done by FOW.  Joan dramatized the challenges ostomates have in poorer areas of the world as well as the political and logistical issues they must resolve every day.  One remarkable situation she discussed was the environment in the United States.  There are poor areas in America that are in serious need of supplies, but governmental policies and bureaucratic regulations have made it impossible to help these poor people.  Some of the biggest challenges FOW faces are the strange regulations each country legislates regarding the acceptance of donated ostomy supplies.  Joan's presentation made the issues faced by FOW in promoting its missions most enlightening for us.  On a positive note, our Chapter is the fourth largest donor of supplies to FOW.  This is quite an accomplishment, and special credit is due to the many people who have donated unneeded, new supplies to our Chapter.

      The winner of our 50/50 drawing was Lois Knack with the consolation prize going to Bob Mann.  Our Hospitality table was well supplied by many people who donated delicacies, and as always we thank their generosity.  Our Chapter is a completely volunteer ostomy support group.  We only exist because of our members.  Those who sacrifice time, share talents and donate resources to assist each of us celebrate our new life.  

   

            Renard

 

 

Our next general meeting will be on Wednesday, March 28, with fellowship beginning at 7:00pm and the meeting at 7:30pm. As always, snacks are appreciated!

This month we are fortunate to have our Walgreen's pharmacist, Earl Sternfeld, return for a most informative discussion on herbal remedies and their interaction with prescription drugs. Our ET of the month will be Bernie Bailey of Resurrection Hospital. We will celebrate our 26th chapter anniversary at our April meeting and the installation of officers will take place at our May meeting. Further details will follow in next month's newsletter.

.............................

Hollister Party on March 24

Hollister has invited us to an open house at their facility in Libertyville, Illinois from 10:00 a.m. until 2 p.m. on Saturday, March 24.  If there are enough people to justify a bus, Hollister has agreed to pick up our members at one specific location. (We are thinking of Lutheran General Hospital, since everyone knows how to get there, and parking is free in the lot across the street).  The bus would leave Lutheran General in time to be at Hollister at 10:00 a.m.  It will depart Libertyville at 2:00 p.m.  Hollister will have displays of their products, a set up for viewing their new web site, and conduct a tours of their headquarters facility.  A courtesy lunch will be provided.  Members of the Milwaukee, Wisconsin Chapter, led by Tom Huber & Norm Kelly will also be there.  This is a wonderful opportunity to get to know more ostomates, as well as getting better acquainted with Hollister.  We have about 30 people signed up as this newsletter goes to press.  If you want on this fun bandwagon, phone Dave Rudzin (312-466-3683) by March 12.  If you will attend but prefer to drive your own car, please let Dave know that, too.

David Rudzin, President Chicago's North Suburban Chapter, 312-466-3683

Rudyman22@aol.com

 

Now hear this!

If you're a C, you're due!

 

Watch your mail for a dues notice from UOA.  If you receive one, you're a C!  A C-quarter member, that is.


C-quarter member's dues are due before April 15.  This is your last newsletter before the deadline.  Send $30 dues to:

Chicago's North Suburban Chapter UOA

c/o Frank Giorno, Membership Chairman

7605 W. Fullerton

Elmwood Park, IL 60635

....................................................

Friends of Ostomates Worldwide (FOW-USA)

by Joan Loyd, FOW representative

 

Subject: Recycling

Ostomates often change the type of appliances that they wear, sometimes resulting in a surplus of ostomy supplies that may never be used again. Some ostomates are fortunate enough to be able to be reconnected and no longer need appliances. If you or a loved one find yourself with an unused supply of clean, new ostomy supplies that have been properly stored to protect their usefulness, don't throw them away! Donate them to our Chapter.  Donations to our Chapter are used locally if possible.   Remaining supplies are sent to Friends of Ostomates Worldwide. They are then distributed to ostomates in third world countries who do not have access to the modern ostomy appliances that we have here in the United States. Don't take your pouches for granted, and please, never throw away supplies you no longer need! If you live in the Chicago area, contact Joan Loyd (847-724-7453) and she will try to arrange pick up of your supplies.  If you live outside the Chicago area, you may send your supplies directly to:

 

FOW-USA Project SHARE

Gilchrist Polymer Center, BLDG. # 3

Mogadore, Ohio 442-1245

................................


LOOKING' GOOD!

It's hard to straighten a back that has endured compression fractures as a

result of Osteoporosis. These are painless, but they result in loss of

height, a thickening waistline and that "round shouldered" look. Age is

usually the culprit, but years of steroid treatment, and loss of estrogen

also contribute to Osteoporosis. And although it is usually not very

painful, it is a fact of life, especially for women. We can't change it, but

we can fool Mother Nature. Here are a few tricks:

-- Wear slacks with elastic waistlines (one hip may be higher than the

other).

-- Raglan sleeves, dropped shoulders and dolman sleeves are most attractive.

-- Jewel necklines, loose cowl collars and V-necks make your neck appear

longer.

-- Clothing that is loose, straight or just slightly fitted is best.

-- Wear dresses with an empire (raised) waist, a dropped waist, or an A-line

cut.


-- Long scarves highlight your face.

-- Add small shoulder pads to compensate for sloping shoulders.

-- Use a backpack instead of a shoulder bag. This distributes weight more

evenly and leaves your hands free for balance. Also, shoulder bags emphasize

your shoulders and can even cause pain!

-- Here is a tip if your sloping shoulder(s) cause your bra strap to slip.

Sew a short length of elastic from the back of the bra strap to a spot near

the hooks or eyes. Make sure the elastic is taut enough to keep the strap

from slipping, but is not uncomfortable. It works for me!

Look good - - feel good!!!

 

Everything I need to know about life, I learned from Noah's Ark...

One: Don't miss the boat.

Two: Remember that we are all in the same boat.

Three: Plan ahead. It wasn't raining when Noah built the Ark.

Four: Stay fit. When you're 600 years old, someone may ask you to do something really big.

Five: Don't listen to critics; just get on with the job that needs to be done.

Six: Build your future on high ground.

Seven: For safety's sake, travel in pairs.

Eight: Speed isn't always an advantage. The snails were on board with the cheetahs in time.

Nine: When you're stressed, float a while.

Ten: Remember, the Ark was built by amateurs; the Titanic by professionals.

Eleven: No matter the storm, when you are with God, there's always a  rainbow waiting.

 

********************

 

February, 2001

 

Last Month's Meeting:  The weather was co-operative for us to have our first General Meeting of the new year.  Our program in January was the annual panel discussion.  Like always, we had a wonderful group of people.  They told us about their health  histories which lead to ostomy surgery, as well as the challenges and successes of living their new life.  This was a moving presentation.  Listening to our panel re-live experiences, and share intimate details about their lives made this meeting emotionally uplifting.  UOA may be the only place where we have the opportunity to hear other people talk about ostomy surgery in a completely open and supportive environment.  It reminds us how fortunate we are to have chosen our new life over disease and sickness.  Our presenters were:  Joan Bodden, ileostomy; Kim Eberhardt, continent urostomy; Rhoda Gordon, colostomy; and Tim Traznik, ileostomy.

The lucky winner of our 50/50 drawing was past president, Gerry Kuntz.  The consolation prize was awarded to first timer, Ann Stipulin, who was there with her husband who has ostomy surgery pending.   Our hospitality table was generously supplied with bakery goods provided by Diane Breckenridge, Frayda Dean, Gerry Kuntz and Linda Narcaroti.

   

            Renard

 

President's Letter:

 

MY TWO MOST FAVORITE WORDS

As the President of your chapter, there are many responsibilities and duties that need to be carried out at a chapter level, state level and National level. To carry out all of these would be totally impossible if not for two words :

 

VOLUNTEER

 

SUPPORT

 

Def. A person who gives his services of his own free will

 

Def. To bear the weight of from below To prevent from falling To withstand A person who provides aid

If we now combine these two words we then define who we are:  Our chapter and the United Ostomy Association as a whole are made up of VOLUNTEERS who SUPPORT other people.

 

This support comes from people who give of their time and effort in order to discuss with new ostomates or potential ostomates the impact their surgery will have on them.

Within our chapter, and the organization as a whole, we have a group of people who give of their time and provide aid to prevent others from falling, to prevent others from bearing the total weight of their new look by themselves.

 

We share our knowledge, our experience and our tips that we have accumulated over the years. We lend our support to those who may be just learning about this for the first time. We volunteer our time in order to educate others as to the daily expectations that our "new look" will bring.

 


I ask each and every one of us to do is to define what these terms mean to us and then apply those to better our chapter. If your idea of volunteering is to help plan a program, or to make phone calls, we WELCOME your assistance. If your idea of support is to contribute financially to the chapter or to be a visitor, that is WONDERFUL as well.

 

The bottom line here is that we all, each and every one of us participate in these endeavors-VOLUNTEER & SUPPORT.

 

We welcome YOUR participation and look forward to INCREASING our VOLUNTEERS and our SUPPORT !!!

 

Dave Rudzin

.............................

Ostomy Surgery and Depression

 

The gray cold days of winter can be a time of depression.  Ostomy surgery leaves many people feeling depressed no matter what the season.  This article from a previous New Outlook reminds us to Abe easy on ourselves, and also reminds us that there is help out there.  If you feel discouraged and hopeless, be sure to discuss it with your doctor.

 

Reprinted from The New Outlook, September 1992.   Sleeplessness, loss of appetite, feelings of guilt or worthlessness, irritability and a desire to be alone, as well as a loss of sexual desire, are some of the symptoms of depression.  It can be triggered by the inability (at this time) to participate in normal daily pleasurable activities, or by a sense of helplessness and lack of control over your body.  Depression also can be caused by medications, stress, malnutrition, anesthesia, or metabolic imbalance.  People who base their self-esteem on their physical appearance, their independence, their always in control - take charge character, or their Good Samaritan behavior (always helper or solver), have a harder time dealing with illness, their ostomy, their lack of control over their bodies and their need to depend on others for help, even if only temporarily.  Constantly tired from efforts to cope with daily household or work routines, while learning to adapt to physical requirements of this unpredictable new addition to your body, leaves little energy for enjoyment of leisure activities or romantic involvement.  It takes us some time to return to our normal lifestyle.  So relax - do what you are capable of doing at this time, and don't try to rush things.

Most people need a few months before they feel secure about being accepted.  Join the crowd!  You are not alone.  We all go through this.

 

Give yourself a year for a good recovery and if it takes less time, consider yourself a very lucky person.  Meanwhile do what you have to do, in whatever way you are capable of doing it, but don't give more than a passing thought to the things you can't do right now.


You will have to take some short cuts, do some improvising, and indulge in some healthy neglect.  Don't be bashful about asking for, and accepting help.  Accepting help can be harder than giving help, especially if your role has always been that of helper.  Some people conceal their ostomy from their spouse, families or lovers because they fear rejection, feel shame or embarrassment, are modest, or have noticed evidence of disgust.  This results in a feeling of isolation, depression, and chronic anxiety.


If you feel yourself in this rut, get in touch with your doctor B right away!  There is help for you.  Life has been given to you anew.  Don't let depression spoil it.  Depression is a treatable condition.  Get whatever help you may need to enhance the quality of the life that is yours to live.

.....................

 

New Medicare Allotments

 

By Gerry Eiseman (by way of Convatec Better Together Club@

 

Medicare has increased the number of items you can use per month without the

need for additional documentation for medical justification. The monthly utilization guidelines have the following changes:

 

*Drainable pouches have increased from up to 10 to up to 20/month

*Urinary pouches have increased from up to 10 up to 20/month

*Closed pouches have increased from up to 31 to up to 60/month


*Irrigation sleeves have increased from 1 to up to 4/month

*Solid skin barriers and skin barriers with flange have increased from up to 10 to 20/month *You can now also use one ostomy belt per month

 

These changes took place on October 1, 2000. These changes may relieve the pressure to wear the appliance for "one more day@.  A doctor's letter is needed ONLY if you must exceed the above guidelines.

 

From Gerry Eiseman, a quote from Alexander Humboldt (German scientist and explorer):

 

 "I am more and more convinced that our happiness or unhappiness depends far more on the way we meet the events of life, than on the nature of those events themselves."

 

 

THINGS I WISH I'D KNOWN BEFORE I WENT OUT INTO THE WORLD

 

1. Any and all compliments can be handled by simply saying "Why, thank you!"

 

2. --- And it helps if you really mean it.

 

3. In every endeavor, some people are working backstage, some are playing in the orchestra, some are on stage singing, some are in the audience as critics and some are there to applaud.  Know who you are and where you are.

 

4. When baking, follow directions. When cooking, go by your own taste.

 

5. Never continue dating anyone who is rude to the waiter and doesn't like dogs/cats.

6. You need only two tools. WD-40 and duct tape. If it doesn't move and it should, use WD-40. If it moves and shouldn't, use the tape.

 

7. The five most essential words for a healthy, vital relationship: "I apologize" and "You are right."

....................


 

November 2000

 

President’s Letter:

Well, my friends, we are now in the first stages of our Annual Holiday Season.

We all know that, because the "official" Holiday Season begins when the last piece of Halloween candy has been eaten and when many of us realized that we forgot to reset the clocks on Sunday morning.

These changes in time and in our schedules disrupt our Circadian rhythm. This is the rhythm we all live with:  Our Internal Metronomes.  Disrupting a person's rhythm or schedule can be a  major inconvenience and as an ostomate, it can have major impacts.

We are now on a different schedule than our body is. We know how long that dinner will take to pass through, BUT our clock says we should sleep till 8 am. Our bodies tell us we better be up by 7 am, or we will have problems. From a mental and visual perspective, we know now that we leave for work while the sun is up and come home well after it sets.

We as ostomates are in a better position to adjust to these changes. Just remember over the course of our lives, WE ADJUSTED to our illnesses or conditions. Then we had surgery or surgeries and we AGAIN ADJUSTED to that.

We began to adjust physically and after a while most of us began to adjust mentally and psychologically as well. We are ADAPTABLE and so  are our bodies. And we ALL know now that it will take a LOT more than a  mere time change to disrupt OUR LIVES.

On behalf of the entire Board of Directors, I would like to wish everyone a very Happy and Healthy Holiday Season.

No matter what Holiday you celebrate, may it be one of Joy & Happiness to you and your family and may the upcoming year of 2001 be  a VERY GOOD kind of "Odyssey" through space and time for us all !!!

Looking forward to see you ALL at our Annual Holiday Party on Tuesday, Dec. 5 beginning at 6:30 p.m.

Dave Rudzin
.....................................

President’s Message
August 2000

  Dear Fellow Ostomates,
     This month of August that will be a busy time for many of us. From Aug. 15-20, the United    Ostomy Association is having their Annual Convention in St. Louis and we will represent you there. We are there to have fun and to learn many things, but one of the most important things is to vote on the state of affairs that exist and the program that will be supported in the future by the UOA.

      I am happy to say, that I am VERY PROUD of our chapter. Unless my math fails me, our chapter will have the LARGEST CONTINGENCY in the country of representatives in St. Louis, and even though we are one of the largest chapters in the nation, we will have representatives in DOUBLE FIGURES THERE !!! I believe that is UNHEARD of by any UOA standards, and I think it shows the dedication, commitment and determination of OUR group. I will be HONORED and PROUD to lead our delegation down to St. Louis.

      This year will be the first time many of our people have attended a convention.  For others it will be the first time they will be a delegate.  Being represented at convention means sharing a common bond with THOUSANDS of people all over the country. Being a delegate means YOU have the obligation and duty to listen to what is presented and cast your vote for the future direction of our organization.

      At last years conference, I must admit, they painted a bleak picture of the future, both financially and in membership.

      Due to hard work by many people in each and every chapter INCLUDING ours, the
  picture has become "rosier".  Are we out of the woods yet?  NO, but I feel with the kind of representation WE have going down to St. Louis, representing YOUR needs, our chapter will take a LEAD role in formulating the direction of UOA in the future.

      I would like to personally thank ALL the officers, former officers, and chapter members who have committed to going to St. Louis. Your commitment NEVER goes unnoticed and I want to honor you ALL and say THANKS for playing such an active role. YOU ALL are what UOA represents and I'm grateful to each and every one of you.

  Dave Rudzin, President

   



 President’s Message
June 2000
  Dear Friends and Fellow Ostomates,

  This will be my last message to you as President.  At our May meeting we
  elect a new slate of officers.  Endings and new beginnings -- that is the
  ostomate story, isn’t it?

  When ulcerative colitis or Crohn’s disease has kept us sick and
  uncomfortable, surgery can be a welcome relief.  When we discover
  cancer or experience trauma, ostomy takes us by surprise, and we may
  rant and rave and resent the change.

  So it is with leadership.  Sometimes we are unhappy with the power
  structure and welcome a change.  Sometimes we are comfortable with
  status quo and balk and protest at adjusting to something new.

  All the while, in the deepest parts of our hearts, we know that ostomy
  surgery has given us life B a second chance at life, a better quality of life.
  Change resulted in personal growth and new hope for the future.

  New officers do that for our chapter.  New officers bring  new ideas, new
  skills.  New officers bring new approaches and new ways of doing things.

  Whether you were miserable or comfortable in the past, give the new
  leadership your enthusiastic support.  Growth and new life for our Chapter
  lie ahead.   We have adjusted to many changes in our personal lives.  Let
  us welcome this change of officers and the hope it brings for the future of
  our Chapter.

  Your friend and fellow ostomate,

  Joan Loyd

   

    

   Dick Dorman, past president of our Chapter is also a supportive member
  of the Jackson, Mississippi Chapter.  He found this in their newsletter and
  wants to share it with you.

  >From the Internet by way of Inside Out, Winnipeg Ostomy Assoc. and
  Ostomy Assoc. of Jackson, Mississippi.  Author unknown.

  DANCE LIKE NO ONE’S WATCHING

  We convince ourselves that life will be better after we get married, have a
  baby, then another.  Then we get frustrated that the kids aren’t old enough
  and we’ll be more content when they are.  After that, we’re frustrated that
  we have teenagers to deal with ... we will certainly be happy when they’re
  out of that stage.

  We tell ourselves that our life will be better, more complete, when our
  spouse gets his/her act together, when we get a nicer car, are able to go on
  a real vacation, when we retire.  The truth is, there’s no better time to be
  happy than right now.  If not now, when?

  Your life will always be filled with challenges.  It’s best to admit this to
  yourself.  Know this and decide to be happy anyway.  One of my favorite
  quotes comes from Alfred D. Souza.  He said, “For a long time, it had
  seemed to me that life was always about to begin.  Real life.  But there was
  always some obstacle in the way, something to get through, time to be
  served, some unfinished business, a debt to be paid.  Only then, would life
  begin.  At last it dawned on me that these obstacles were my life.”

  This perspective has helped me to see that there is no way to happiness.
  Happiness is the way.  So, treasure every moment that you have and
  treasure it more because you shared it with someone special, special
  enough to share your time with and remember that time waits for no one.

  Stop waiting until you’re finished with school, until you go back to school,
  until you loose ten pounds, until you gain ten pounds, until you have kids,
  until your kids leave the house, until you start work, until you retire, until
  you get married, until you get divorced ,until you get a new home or a new
  car or until your car and home are paid for, until spring, until summer, until
  fall, until winter, until the first or the fifteenth, until your song comes on,
  until you’ve had a drink, until you’ve sobered up, until you die, until you
  are born again B to decide that there is no better time than right now to be
  happy.

  Happiness is a journey, not a destination.  So:  “WORK LIKE YOU
  DON’T NEED MONEY, LOVE LIKE YOU’VE NEVER BEEN HURT,
  AND DANCE LIKE NO ONE’S WATCHING!”

   ..........................
  A farewell note from Joan

  These past three years as your President have been rewarding to me.  I
  have enjoyed representing you at our national convention.  At these
  conventions I learned a lot and met marvelous people from all over the
  world who are ostomates.
  I have enjoyed our meetings.  You are attentive, enthusiastic and
  welcoming.  You truly are a support group.  You support each other and
  you have supported me.

  I have enjoyed working with the dedicated, hard-working volunteers who
  make our chapter one of the best in the nation.  I cannot name them all --
  that would take all the space in this entire newsletter.

  I have enjoyed being your President, and I thank you sincerely for that
  privilege.

  Joan Loyd
  .........................

April, 2000 New Outlook

President’s Message

Dear Friends and Fellow Ostomates,

May I share with you a paragraph from the book "The Road Less Traveled and Beyond" by M. Scott Peck, M. D., a psychiatrist and author of many best selling books:

"The English poet, Alfred, Lord Tennyson wrote: "A lie which is half a truth is ever the blackest of lies"

"The biggest lie promoted by various of our social institution , and this in some ways plays into our human nature and our sin of laziness, is that we’re here to be happy all the time. We’re bombarded by business, the media, and the church with the lie that we’re here to be happy, fulfilled, and comfortable. For motives of profit, the lies of materialism and advertising suggest that if we’re not happy, comfortable, and fulfilled, we must be eating the wrong cereal or driving the wrong car. Or that we must not have it right with God. How wicked! The truth is that our finest moments, more often than not occur precisely when we are uncomfortable, when we’re not feeling happy or fulfilled, when we're struggling and searching.

As ostomates, we know the feeling of being a little uncomfortable, of being a little unhappy, of struggling and searching to fit into a society that deems us abnormal.

We also know we are the same persons we were before surgery, just as smart, just as compassionate, just as funny. We know that little round opening has nothing to do with who we really are.

If we can truly learn this lesson, we can truly live. We can evaluate all issues of life on merit, disregarding what society says is "normal". Knowing society is wrong about us gives us enormous power, power to challenge the norms and stick to judgments that are right for us.

Our surgery may well have been one of our finest moments.

Your friend and fellow ostomate,

Joan Loyd

******************************************************************************

March, 2000

President's Message

Dear Friends and Fellow Ostomates,

As I write, it is 70 degrees outside. A record for February in our area. Crocuses are blooming.
Daffodils are up and budding. Life is renewing itself again!

How common in life are cycles: A cycle of energy, a cycle of lethargy. A cycle of work, a cycle of leisure. A cycle of tumult, a cycle of quiet. A cycle of growth, a cycle of decline. A cycle of health, a cycle of sickness.

How human of us to look at the pleasant cycles and think that is the way life is supposed to be -- all the time. When the cycle turns difficult, we call it a bad time. We wonder why bad things are happening to us. We may become angry and look for someone to blame. We may wonder if we are being
punished.

At our meeting last month, ET Rhonda Kravitz talked about using gratitude to re-frame our thinking. When we encounter a harsh cycle, gratitude can help us focus on the positives. Rhonda asked us to name good things that have come as a result of our ostomies, good things for which we are grateful.

I challenge you to do just that! Write down five things you are grateful for in your cycle of surgery, then be positive about them.

Where you look determines what you see!

Your friend and fellow ostomate,

Joan Loyd
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FOW (Friends of Ostomates Worldwide)

    FOW stands for Friends of Ostomates Worldwide. This is a sub-group of the national UOA that organized to collect and ship ostomy products and supplies to third world countries. All supplies shipped are donated. The donated supplies you bring to our meetings, if not claimed by one of our members, are boxed and shipped to Akron, Ohio.
       There they are collected, re-packed and shipped overseas to areas where there is a medical contact (so proper use may be made of the products).
    Our chapter has received Thank You letters from FOW (Friends of Ostomates Worldwide) for the last three large boxes of supplies we shipped them - two in January, and one in February.
    Membership dues to FOW are used to pay for shipping overseas. As a chapter we pay membership dues of $150 per year to FOW ($1 per member with a $150 maximum). Individual memberships are also available. If you are interested in being a part of this worthwhile cause, contact Joan Loyd.
    If you have new, unused ostomy supplies that are no longer of value to you (changed size, type of appliance, etc.) you may either bring them to a meeting, or you can ship them directly to FOW.
The address for the collection of ostomy supplies is:

FOW Project SHARE
c/o AWS Logistics
1501 Exeter Rd.
Akron, Ohio 44306
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United Ostomy Association Chicago North Suburban Chapter
February, 2000 New Outlook

President's Message

Dear Friends and Fellow Ostomates,
    February is the month of hearts and flowers. Another month in which advertisements try to convince us that buying things, receiving things brings happiness.
    If we buy into this, we are guaranteed unhappiness. We will look at what we have, compare it to what someone else has or to what might be possible to have and feel deprived and unhappy.
    February is also the month of Presidents, one of whom said, "Ask not what your country can do for you. Ask, rather, what you can do for your country."
    This approach changes attitude. Ask not what life can give you. Ask, rather, what you can give to life.
    Waiting for love to come to you will bring long, lonely days. Loving those around you every day, greeting them with joyous appreciation, leaving in your path random acts of kindness will change your world, and is guaranteed to make you happy.
    This month of hearts and flowers, give bouquets of kind and loving words, give sweet acts of consideration. Tell those around you how much you love them. Tell them how much you enjoy and appreciate the common everyday things you do together.
    Another President said, "Most people are just about as happy as they make up their minds to be." Another way of saying attitude determines happiness. Looking at life with eyes of gratitude changes attitude.
    As ostomates, we can feel that life has given us a raw deal, be angry and feel entitled. Alternately, and it may take some effort, we can focus with gratitude on the good things -- the pleasures and gifts of life. We can be just about as happy as we make up our minds to be.

My Valentine to you is this anonymous verse:

Yesterday is history
Today is a gift
It's called The Present!
Live and savor every moment
Life is not a dress rehearsal!

Your friend and fellow ostomate,
Joan Loyd

 

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