Chicago's North Suburban Chapter
United Ostomy Association

Highlights from The New Outlook
The New Outlook
November, 2001
Last Month's
Meeting:
Even the high winds
and rain could not stop over 100 people from attending our Annual Product
Fair. We had a wonderful turn out with
UOA members from surrounding chapters including the DuPage Chapter
attending. The raffle with the
many fine donated prizes was also a big hit. We sincerely want to thank all the vendors and manufacturers participating.
We had many companies displaying their current, new and innovative
products and services. Hollister
brought an interactive presentation featuring a video internet library from ostomyworld.com
. Coloplast featured new
ostomy appliances along with Sween Cream, which when used with an ostomy system
will relieve red and sore skin under the barrier. The Cook company presented non-adhesive systems featuring a
plastic ring that fits around the stoma. KEM Enterprises demonstrated the Osto-EZ-Vent
including the new deodorant disc that may be inserted into the vented
spout. ConvaTec had a popular
booth featuring their new closed pouching systems for colostomates as well as
ileostomates. Our loyal local
suppliers, Mark Drug Home Heath as well as Walgreen's displayed an entire array
of products and services to enhance the quality of life for ostomates. We also thank Cymed, Parthenon Company,
New Hope and others for sending product samples for our members to try. We truly appreciate the quality of the
presentations and the personal sacrifices made by our vendors by being away
from their families to participate in our fair.
Dave Lebovitz from Walgreen's won the 50/50. The consolation prize was awarded to Sue Sieger. Entertainment books were on sale at a
special price of $25 from Roger, and Carson Days coupons were on sale for only
$5.00 from Dave. Our Hospitality
table was deliciously supplies by Joan Loyd, Mike Moneysmith, Linda Narcaroti,
Gail Olson, George Rasof and Sally Schinberg.
We hope to see all of you at our Gala Holiday Party in December. We're going to have a great time. See you there,
Joan Boden
Gala
Holiday Party!
Please join us on Wednesday, December 12th
at 6:30 p.m. at Lutheran General Hospital in the East Dining Room for our Gala
Holiday Party! Many activities are
planned, including dinner, Santa’s Gift Bag (bring a $10 unisex gift and take
one home), holiday music, games, and fun.
We are also in need of people who will
bring food to the Gala Holiday Party, whether it is a special holiday recipe
that everyone raves about or something you enjoy shopping for. The following types of food are needed:
Appetizers Salads Side Dishes Main Dishes Desserts
Each dish should have about 8 – 12
servings, although more is always welcome. Please Note: heating facilities are limited, so if you are
bringing a hot dish, please bring it already heated and in an insulated container. Also, don’t forget to bring serving
utensils.
If you would like to bring something to
share, please contact Sally Schinberg at 847-364-0690 or aagrmgshow@aol.com ,
or Mike Moneysmith at 847-566-9132 or MikeMoneysmith@compuserve.com , and give
us your name, telephone number, and what food item you would like to bring.
This is a great time for us to celebrate
the season with dinner, songs, and friends. We look forward to seeing you at the Gala Holiday Party.
Friends
of Ostomates Worldwide
Needs
a Home and Few Good People!
FOW-USA Project SHARE needs a new home. Headquarters for receiving donations of ostomy products,
sorting and re-packing them for shipment overseas has been in the Cleveland,
Ohio area since 1986. In October
their donated warehouse was leased to Toys-R-Us. We need:
Now we face the chicken or the egg question. Does the warehouse come first, then
look for volunteers to staff it?
Or do the volunteers come first, then try to find warehouse space?
The Board of Directors decided the people are the most important part of
this project. They are asking
chapters in Boston, Miami, Chicago, San Francisco, St. Louis and Minneapolis if
they would be willing to sponsor Project SHARE by looking for volunteers. If volunteers are found, then a
warehouse will be searched out.
Our Chapter has agreed to look for volunteers. If a warehouse can be found in an area near Chicago's north
suburbs, would you be a volunteer for a day or two a month?
If you have a day or two a month and would be willing to work with this
worthwhile, all volunteer effort please phone Joan Loyd at 847-724-7453 or
e-mail at rjloyd@nwu.edu. Joan will try to answer any
questions you have about this project.
A list will be started and we will let you know if we succeed in earning
the opportunity of winning Project SHARE for Chicago.
President's Message
Last month our Chapter had a special event
that focused on one of the most important, significant and vital contributions
that we as ostomates may do for others … visit someone who is about to have or
who has just had ostomy surgery.
On November 3, our Chapter sponsored a visitor training session at
Lutheran General Hospital. It was
very refreshing to see many people from other chapters participate as well as
our members. This education leads
to certification as a UOA visitor.
It
is one of our missions to work with people who are about to have or have had
ostomy surgery by sharing our joy in having a new life. A visit is probably the first time a
person facing life with an ostomy has an opportunity to intimately discuss his/her
issues, fears or concerns with someone who has actually had surgery and is
optimistic about living life with an ostomy. This action transforms the idea of living with an ostomy
from something nebulous, just an imaginary idea, to something very real that
one may actually visualize.
I would like to extend my thanks to three
of the people who made this training session a success with the participation
of over 25 attendees … Peggy Christ, Sue Neu and Jeri Zaslavsky.
Peggy is an experienced ET nurse who
writes, lectures, trains and supports UOA nationally. Her list of credentials alone would fill a newsletter. She lives in Omaha, Nebraska, and
traveled here specially just so she may be with us to assist in this
educational program. She added her
knowledge along with a great sense of humor.
Sue is one of the ET nurses who donates
her time regularly to our Chapter.
She has made interesting and informed presentations on many occasions. We especially appreciate Sue once again
taking time from her family to come on a Saturday morning to share her
knowledge and wisdom with us.
Jeri is a member of our Chapter and serves
as our Visiting Chairperson. It is
through Jeri's team that most of our visits are coordinated. She tries to match the demographic
profile of a patient with a visitor so there is the most in common between them
and a rapport may be easily established.
She tackles this task with fervor and with determination. We want to thank you Jeri for the
donation you have made to our Chapter of your talent, time and caring . We are especially grateful for
sponsoring this marvelous educational experience.
It is primarily due to the work of these
generous women that our visitor training session was so beneficial and
successful. Thank you for helping
us toward our goal of fulfilling our mission of ostomy education by teaching us
proven methods of offering others the enthusiastic emotional support needed
when facing life with an ostomy.
Dave Rudzin
Encouragement
Two men, both seriously ill, occupied the same hospital room. One man
was allowed to sit up in his bed for an hour each afternoon to help drain the
fluid from his lungs. His bed was next to the room's only window. The other man had to spend all his time
flat on his back. The men talked
for hours on end. They spoke of their wives and families, their homes, their
jobs, their involvement in the military service, where they had been on
vacation.
Every afternoon when the man in the bed by the window could sit up, he
would pass the time by describing to his roommate all the things he could see
outside the window. The man in the
other bed began to live for those one-hour period where his world would be
broadened and enlivened by all the activity and color of the world outside.
The window overlooked a park with a lovely lake. Ducks and swans played on the water
while children sailed their model boats. Young lovers walked arm in arm amidst
flowers of every color and a fine view of the city skyline could be seen in the
distance.
As the man by the window described all this in exquisite detail, the man
on the other side of the room would close his eyes and imagine the picturesque
scene. One warm afternoon the man by the window described a parade passing by.
Although the other man couldn't hear the band - he could see it in his mind's
eye as the gentleman by the window portrayed it with descriptive words.
Days and weeks passed. One
morning, the day nurse arrived to bring water for their baths only to find the
lifeless body of the man by the window, who had died peacefully in his sleep.
She was saddened and called the hospital attendants to take the body away. As soon as it seemed appropriate, the
other man asked if he could be moved next to the window. The nurse was happy to
make the switch, and after making
sure he was comfortable, she left him alone.
Slowly, painfully, he propped himself up on one elbow to take his first
look at the real world outside. He strained to slowly turn to look out the
window beside the bed. It faced a
blank wall. The man asked the nurse what could have compelled his deceased
roommate who had described such wonderful things outside this window. The nurse
responded that the man was blind and could not even see the wall. She said, "Perhaps he just wanted
to encourage you."
Epilogue: There is tremendous happiness in making others happy, despite
our own situations.
Shared grief is half the sorrow, but happiness when shared,
is doubled. If you want to feel rich, just count all the things you have that
money can't buy. "Today is a gift, that's why it is called the
present."
Contributed by Jane Michnik
THE CRACKED POT
A water bearer in
Israel had two large pots, each hung on each end of a pole, which he carried
across his neck. One of the
pots had a crack in it, and while the other pot was perfect and always
delivered a full portion of water at the end of the long walk from the stream
to the master's house, the cracked pot arrived only half full.
For a full two years this went on daily, with the
bearer delivering only one and a half pots full of water in his master's
house. Of course, the perfect pot
was proud of its accomplishments, perfect to the end for which it was
made. But the poor cracked pot was
ashamed of its own imperfection, and miserable that it was able to accomplish
only half of what it had been made to do.
After two years of
what the cracked pot perceived to be a bitter failure, it spoke to the water
bearer one day by the stream.
"I am ashamed of myself, and I want to apologize to you." "Why?" asked the bearer. "What are you ashamed of? "I have been able, for these past
two years, to deliver only half my load because this crack in my side causes
water to leak out all the way back to your master's house. Because of my flaws, you have to do all
of this work, and you don't get full value from your efforts," the pot
said.
The water bearer felt
sorry for the old cracked pot, and in his compassion he said, "As we
return to the master's house, I want you to notice the beautiful flowers along
the path."
Indeed,
as they went up the hill, the old cracked pot took notice of the sun warming
the beautiful wild flowers on the side of the path, and this cheered it
some. But at the end of the trail,
it still felt bad because it had leaked out half its load, and so again it
apologized to the bearer for its failure.
The bearer said to
the pot, "Did you notice that there were flowers only on your side of your
path, but not on the other pot's side?
That's because I have always known about your flaw, and I took advantage
of it. I planted flower seeds on
your side of the path, and every day while we walk back from the stream, you've
watered them. For two years I have
been able to pick these beautiful flowers to decorate my master's table. Without you being just the way you are,
he would not have this beauty to grace his house."
Moral: Each of us has our own unique
flaws. We're all cracked pots. But it's the cracks and flaws we each
have that make our lives together so very interesting and rewarding. You've just got to take each person for
what they are, and look for the good in them. There is a lot of good out there. There is a lot of good in you!
Blessed are the flexible,
for they shall not be bent out of shape.
Remember to appreciate all the different people in your life! Or as I like to think of it--if it
hadn't been for the crackpots in my life, it would have been pretty boring and
not so interesting.
Thank you all my crackpot friends and family.
Contributed
by Geri Eiseman
********************
October, 2001
Last Month's
Meeting:
We would like to
report that despite the acts of terror against our great nation the day before,
our September General Meeting met as always striving toward achievement of our
important mission.
An exceptional speaker, Dr. Theodore J. Saclarides, M.D. , professor of
colon-rectal surgery at Rush University, presented state-of-the art information
on cancer screening focusing on ostomy issues. Of special interest were the groups of potential patients
developing colon cancer:
High risk are those with hereditary pre-dispositions, multiple first
degree family members with colon cancer before the age of 60, who usually
develop the cancer earlier in life, at about age 45; Those with familial
polyposis, who have a virtual 100% chance of developing cancer by age 40; Other high-risk patients are those with
ulcerative colitis or Crohn's disease with risks as high as 40% for long term
disease; included also are those who upon screening have polyps larger than one
cm. Average risk include 80% of
the population who through environment, eating habits or other conditions could
contract colon cancer usually after age 65.
About 140,000 cases of colon cancer are diagnosed annually, and it is
the second highest cancer killer in the U.S. preceded only by lung cancer. Colon cancer has a high probability of
being diagnosed if one is regularly screened. Colon cancer patients may have an excellent chance of
obtaining a total recovery if the disease is given effective treatment in
time.
Many tools are used for diagnosing colon cancer including occult blood
screening; colonoscopy; sigmoidoscopy; lower GI's. A new tool is now being used called a virtual colonoscopy
which is a non-invasive 20-second computer reconstructed colonoscopy.
People that had surgery one
year ago should schedule a colon examination. If no adverse condition is found,
the next exam should be done in another two years. If results are again normal, an exam should be made in
another three years and every five years thereafter. Individuals in this group who are diagnosed with a
re-occurring cancer have a better than 85% survival rate. People who are
considered at average risk should, beginning at age 50, have a fecal occult
blood test during annual physical exams, a sigmoidoscopy every five years and a
colonoscopy every 10 years. Men
who have had prostrate cancer radiation treatment or pelvic radiation, women
with breast or uterine cancer, or anyone with perianal disease are also
predisposed to having a higher risk of colon cancer. Diverticulitis does not increase ones risk.
Jeri
Zavlasky encouraged everyone to
attend our Visitors Training Education Session to be held on Saturday, the 3rd
of November. An invitation to
reserve a seat is included in this edition of The New Outlook. Also, see the article under the Visitor's Corner. This education is
valuable to anyone with an interest in ostomy surgery. Welcome also are health care
professionals and all our friends at other chapters. We have a world
renown speaker, Peggy Christ, presenting.
We welcome new member Bob Cigrang to our Chapter. He found us through our Internet
site. Frank Giorno was the lucky
winner of our 50/50 Drawing. The
winner of our consolation prize was Dan Sullivan.
Frank Giorno
announced that our Chapter has 287 members. Everyone who renews his/her membership in A-Quarter, the
fall, is requested to please mail
it in early. Our Hospitality table
was deliciously supplied by Karen Budnik, Joan Loyd, Mike Moneysmith, Linda
Narcaroti and Joe Pollelo.
Roger Lotnick
President's Message,
My Dear Fellow Members,
As is my nature in most of my
columns, I dwell on a topic and add some light touches and even humorous
tidbits sprinkled about. However, this is a time when current affairs should
not be taken lightly. I
would like to dedicate this column to the thousands who perished in New York
City, Washington and Pennsylvania on September 11.
They were people who were innocent victims
of an absolute madman and who must be remembered by us. Whether any of us knew these people or not is not the issue.
What is important is that they will be
remembered. How twisted is the
world, when people thousands of miles from our home can impose their maniacal will upon us? It just shows that we as a people have
a very long way to go to earn the right to be called truly human.
I have already
made contact with a few of the UOA people who live in and just outside New York
City and have verified their safety.
One of the terms used to describe many of us in UOA is survivors. Survivors of disease, accident, birth
defect or cancer. It is that fighting spirit and that tenacity that we know
exists in all of us, from New York City to Washington to Pennsylvania and
throughout the rest of our country. We Americans are survivors. Never Again.
Dave Rudzin
Prayer For Hope...
God, we have not
lost faith in you.
We suffered a great tragedy
in the United States on September 11,
a crime against all humanity,
and we know that this attack
could never have been
wrought by your loving hand.
And we are saddened that such
hate and anger lives in
the hearts of men.
Now, more than ever,
we depend on your wisdom,
and we hope for world peace.
We look to you for guidance
during this difficult time,
and ask that you ease
the suffering of every soul
that was touched
by the tragedy.
Please continue to give
us the strength and tenacity
to get through this crisis.
Send your angels to calm
and comfort those
who lost someone they love,
and keep those who perished
safe in your keeping.
Reserve a special place in heaven
for every heroic soul
who lost their life
while trying to save others,
and send your love and healing power
to every person who was wounded.
But most of all, God,
keep the spark of hope
for better days to come
alive in every heart.
Amen
Friends of Ostomates Worldwide (FOW-USA)
Joan Loyd, FOW
representative
FOW-USA has lost the donated warehouse space in Magadore, Ohio where
volunteers did the sorting, packing and shipping. When these volunteers were given only three-weeks notice that
the warehouse had to be vacated, they prepared three tons of donations for
shipping. They packed and
processed supplies urgently needed to:
Uzbekistan 3 pallets Argentina 2
pallets
Bolivia 1
pallet Peru 1
pallet
Nepal 1
pallet Russia 1
pallet
Rumania 1
pallet
Only unmatched flanges or pouches and a pallet of literature were left
to be moved. Please contact one of the officers of our
Chapter (listed on page 2) to arrange for pick up of your donation, or just
have them brought to any General Meeting until a new location is found.
We need new warehouse space donated for this worthy cause. Please contact Joan Loyd at
847-724-7453. The warehouse needs
to be in the area of a major air shipping hub.
Thank you, all of you, for your contributions and your
co-operation. Donations of ostomy
supplies to those in need are just one more of the small people-to-people
efforts that lets the world know the USA is concerned for the welfare of
everyone … everywhere.
Fit For Life: Constant Craving
Eating the occasional chocolate bar really isn't a sin, but if your food
cravings seem to be out of control the following information may come in very
useful: Chocolate is the single
most craved food in this country, especially among women. Strict dieting can intensify cravings
and experts recommend we satisfy them by eating the desired food. Despite this and contrary to popular
belief, it's unlikely our body needs the food we crave.
Think of a craving as a wave, they appear quickly and disappear just as
soon. Clamp down and switch your
focus for fifteen minutes and you'll usually find it disappears. Try playing one of your favorite CDs or
reading a few pages from a book.
Anything will do as long as it keeps your mind off scoffing loads of
chocs! Sometimes even will power
isn't enough and if you're really pining compromising becomes virtually
impossible.
Help Our Chapter!
Entertainment 2002 Books
Books for 2002 are now being offered
to raise funds for our Chapter.
Entertainment Books are on sale now for only $30 (S&H included) and
provide 50% off and two for one offers at the greatest places around. Order yours for any one of over 150
cities. Great for gifts. Just ask Roger Lotnick or go to our
Chapter Internet site to order directly at: uoachicago.org
Carson's Community Day Sale
This is a special event that takes
place on November 17. The packet
contains five $10 savings certificates redeemable on this Saturday only. You
may purchase an event packet for $5 from Dave Rudzin.
Hollister Focus Group
Hollister
International is going to hold a focus group on Tuesday, October 23rd
at their corporate headquarters in Libertyville. They want to talk to people who use closed one-piece systems
… only. They request you arrive at
5:30 when they will hold three different topic discussions. Dinner will be at 7:30 and each
participant will be given a $50 honorarium. It is important that we participate in these sessions. We want the very best products, and
this is our chance to tell a major manufacturer what we want. Please contact Tammy at 847-918-5817 to
make a reservation.
Difference Makers
Can you answer these questions?:
1. Name the five
wealthiest people in the world.
2. Name the last
five Heisman trophy winners.
3. Name the last
five winners of the Miss America contest.
4. Name ten
people who have won the Nobel or Pulitzer prize.
5. Name the last
half dozen Academy Award winners for best actor and actress.
6. Name the last
decade's worth of World Series winners.
How did you do? The point is, none
of us remember the headliners of yesterday. These are not second-rate
achievers. They are the best in their fields. But the applause dies. Awards tarnish.
Achievements are forgotten. Accolades and certificates are buried with their
owners. Here's another quiz. See
how you do on this one:
1. List a
teachers who aided your journey through school.
2. Name a friend
who has helped you through a difficult time.
3. Name a person
who has taught you something worthwhile.
4. Think of five
people who have made you feel appreciated and special.
5. Think of five
people you enjoy spending time with.
6. Name five
heroes whose stories have inspired you.
Easier? The lesson? The people who
make a difference in your life are not the ones with the most credentials, the
most money, or the most awards. They are the ones that care. Pass this on to
those people who have made a difference in your life.
Capsule Camera
Imagine swallowing a camera in a capsule the size of a
vitamin pill to help doctors identify gastrointestinal problems that might
otherwise go undiagnosed. That's exactly what patients at the Mayo Clinic are
doing. The capsule includes a
miniature color video camera, a light, a battery, and a transmitter. The video
camera transmits images to sensors attached to the patient's torso, and a
Walkman-like device the patient wears around his waist records them digitally.
It takes about 8 hours for the camera to make its way through the digestive
tract. The device can help doctors evaluate intestinal bleeding and conditions
that cause pain, diarrhea, or weight loss, such as Crohn's disease. David
Fleischer, M.D., calls the procedure "the medical equivalent of space
exploration of the moon."
********************
September, 2001
Last Month's Meeting:
We appreciate all the brave souls that attended last month's meeting and
battled the miserable rainstorm getting here. We had almost 50 participate!
Susan Neu, RN was our
ET for the month. She spoke about
the need to re-evaluate our ostomy system with an ET on a regular basis in
order to have the best quality of life.
Afterwards, she hosted a stimulating question and answer session. Sue told us that if we wear an
appliance with a more aggressive
barrier for less than three days, we need to review our use of the prosthetic
and our ostomy procedures. Each
time we change our system a thin layer of skin is removed. This is normal. Too many changes will not give the skin
a chance to heal and may cause irritation problems. Of course, there are barriers made to be changed every few
hours like those on one piece closed systems. Colostomates who irrigate and travel should only irrigate
with water that is safe to drink.
Additionally, if your doctor or local pharmacist does not have an answer
to your medication questions, it was suggested to contact a pharmacy school at
a university.
We welcome our new
visitors Libby Brewer and Bill Konopacz who both had their surgeries just six
weeks ago. Amazing! The lucky winner of our 50/50 was Dan
Sullivan. The consolation prize
was awarded to Joe Peak, another first time visitor who had his surgery five
years ago.
Frank Giorno
announced that our Chapter has 287 members. Jeri Zavlasky reported over five visits for August. We are attempting to become more
supportive of patients from the University of Chicago Hospitals. Our Hospitality table was deliciously
supplied by Karen Budnik, Joan Loyd, Mike Moneysmith, Linda Narcaroti and Clif
Southerington.
We had many of our
Chapter members go to the 2001 UOA
Conference. Over 500 people from
around the country attended. There
were many fascinating sessions on all types of subjects every day; the largest
ostomy product fair in the world; a free stoma clinic with experienced ET's;
new product focus groups, and social events till late at night. On a personal note, I met a gentleman
at the conference who has had his ostomy for 35 years. He exclaimed that he made the most
steadfast friends at these conferences.
He then questioned why. I
answered that we already know the most intimate detail about each other. So there is no need to put on
airs. Our friendships can grow
from then on. Next year's
conference will be held from August 14-17 in Philadelphia. We hope to see you there.
We are proud to
announce that our Chapter President, Dave Rudzin, was elected and sworn in on the
National UOA Board of Directors.
We value his friendship and appreciate his dedication performing the
important work of our organization.
Joan Boden
Dave Rudzin
UOA Board of
Directors
We are very proud to announce that our
Chapter President, Dave Rudzin, has been elected to the United Ostomy
Association-USA Board of Directors.
Dave will be working on specially assigned committees representing the
needs of tens of thousands of
ostomates. The last person to be
elected to the Board from our Chapter was Marilyn Mau, who went on to become
UOA-USA President and then a Regional President of UOA-International.
We sincerely appreciates all the sacrifice
and unswerving dedication Dave has repeatedly contributed to our Chapter. We affectionately congratulate him for
attaining this honor, and continuing the tradition of leadership emanating from
Chicago.
President's Letter:
Here is an article that we hope
you find as inspiring as we did titled The
Music Maker: Itzhak Perlman,
the violinist, came on stage to give a concert at Avery Fisher Hall in Lincoln
Center in New York City. If you have ever been to a Perlman concert, you know
that getting on stage is no small achievement for him. He was stricken with
polio as a child, so he has braces on both legs and walks with two crutches. To
see him walk across the stage one step at a time, painfully and slowly, is an
unforgettable sight. He walks painfully, yet majestically, until he reaches his
chair. Then he sits down, slowly, puts his crutches on the floor, undoes the
clasps on his legs, tucks one foot back and extends the other foot forward.
Then he bends down, picks up his violin, puts it under his chin, nods to the
conductor and proceeds to play. By
now, the audience is used to this ritual. They sit quietly while he makes his
way across the stage to his chair. They remain reverently silent while he
undoes the clasps on his legs. They wait until he is ready to play.
But this time, something went wrong. Just
as he finished the first few bars, one of the violin strings broke. You could
hear it snap – it went off like
gunfire across the room. There was no mistaking what that sound meant. There
was no mistaking what he had to do.
People who were there that night thought to themselves, "We figured
that he would have to get up, put on the clasps again, pick up the crutches and
limp his way off stage either to
find another violin or to find another string for this one."
But he didn't. Instead, he waited a
moment, closed his eyes and then signaled the conductor to begin again. The
orchestra began, and he played from where he had left off. And he played with
such passion, such power and such purity as they had never heard before.
Of course, everyone knows it is
impossible to play a symphonic work with just three strings. I know that, and
you know that, but that night Itzhak Perlman refused to know that.
You could see him modulating, changing,
recomposing the piece in his head. At one point, it sounded like he was de-tuning
the strings to get new sounds from them that they had never made before. When
he finished, there was an awed silence in the room. And then people rose and
cheered. There was an extraordinary outburst of applause from every corner of
the auditorium. We were all on our feet, screaming and cheering, doing
everything we could to show how much we appreciated what he had done. He smiled, wiped the sweat from his
brow, raised his bow to quiet us, and then he said, not boastfully, but in a
quiet, pensive, reverent tone, "You know, sometimes it is the artist's
task to find out how much music you can still make with what you have
left."
What a powerful line that is. It has
stayed in my mind ever since I heard it. And who knows? Perhaps that is the
true goal of life – not just for artists but for all of us. So, perhaps our task in this shaky,
fast-changing, bewildering world in which we live is to make music, at first
with all that we have, and then, when that is no longer possible, to make music
with what we have left. Jack Riemer, Houston Chronicle
A Fruit's Hue Colors Its Nutritional
Value
The next time you walk down the produce aisle, let color be
your guide: the more intense the pigment of a fruit or
vegetable, the richer it is in health-promoting compounds.
blueberries, blackberries, and strawberries pack the
highest nutritional wallop, says Dr. Luke Howard, professor
of food science. They owe their vivid colors to
generous portions of cancer-fighting pigments. As a bonus,
blackberries and strawberries also contain vitamin C.
Deep green vegetables like spinach and broccoli also score
high in the nutrition game, but even pale vegetables like onions contain
pigments that protect against heart disease. They've also been shown to lower
cholesterol and maintain a healthy immune system. Here again though, color
counts: red and yellow onions have more nutrients than white ones. The same
holds true for tomatoes: they get their scarlet color from lycopene, which may
protect against prostate cancer, and the redder they are, the more lycopene
they have.
Tea Maintains Healthy Arteries
Black tea consumption has been associated with maintaining
healthy arteries in people with a history of heart disease, say the authors of
a study published by the American Heart Association. They found that black tea
promotes activity of the endothelium, or inner lining of the blood vessels. A
healthy endothelium allows blood vessels to expand or contract in response to
minute-by-minute changes in the need for blood flow, and it inhibits the
formation of blood clots and the development of inflammation in the vessel
wall, all of which are often impaired in people with arteriosclerosis. In this
study, researchers compared the immediate and longer-term effects of black tea
to water consumption on the arteries of 50people with coronary artery disease,
and found that
only the tea improved arterial function. Senior author Dr.
Joseph Vita says these findings suggest that black tea may help reverse
arterial dysfunction and could reduce the risk of heart attacks.
High on HDL
When it
comes to cholesterol, having enough of the good stuff could be an important
risk reducer for stroke. According
to recent research, having HDL (good) cholesterol levels above 35 mg/dl may
reduce your risk of stroke by as much as 50%. To help keep your HDL levels
high, engage regularly in cardiovascular exercise and choose mono unsaturated
fats instead of saturated fats in your diet. Real age Benefit: Reducing your total cholesterol to 160
mg/dl or lower can make your "real age" as much as one year younger.
|
Foods That Help Fight Cancer
by Beth Gilbert
"Eat your vegetables – they're good for you!" How many times
did we hear that when we were growing up? Could it be that our mothers were
actually on to something? Most definitely, yes, researchers say.
And if your mom also pushed you to eat fruit, legumes (dried peas and beans),
whole grains, nuts and seeds, she was a true cancer prevention visionary.
Medical experts now say these plant-based foods contain chemicals that may
help protect us from getting cancer. They believe the vitamins, minerals,
phytochemicals and antioxidants these foods contain may protect our cells
from damage caused by cancer-causing substances. "Quite simply, what we put in our
mouths can give us an edge in protecting ourselves from developing
cancer," says Cindy Moore, M.S., a spokesperson for the American
Dietetic Association. "The most important thing – as a means to
preventing cancer – is to eat a variety of healthy foods. I know that idea is
old hat, but it's still true. Being well-nourished enhances our body's immune
system and energy stores. It also keeps tissues from breaking down and helps
to rebuild them. "Different foods also provide the
different nutrients our bodies need for good health," she says.
"And while it's important to incorporate proteins – meat, fish, poultry,
eggs and soybeans – as a key component in our diet, there's strong evidence
that a diet that's rich in a variety of plant-based foods can help protect us
against cancer. In fact, in a recent report, researchers
determined if the only positive change we make is to eat five servings of
fruits and vegetables each day, we may be able to lower our risk for cancer
by 20 percent. In addition, if we eat those fruits and vegetables, exercise
regularly and maintain a healthy weight, we may lower that risk by 40
percent. Seven Simple Tips to Help Lower Your Risk for
Cancer The American Institute for
Cancer Research offers the following guidelines and ammunition in our
on-going battle to prevent cancer: · Choose
a diet that's rich in a variety of plant-based foods. · Eat
plenty of fruits and vegetables. · Maintain
a healthy weight and be physically active. · Drink
alcohol in moderation – if at all. They recommend a maximum of two
alcoholic drinks per day for men and one for women. · Eat
foods low in fat and salt. · Prepare
and store food safely. · Do
not use tobacco in any form. For more information about diet,
nutrition and cancer prevention, log on to the Web site of the American
Institute for Cancer Research at www.aicr.org. |
New Site Explains Lab Test Results
If
you've ever been stumped by all those numbers on a lab printout, you'll want to
check out www.labtestonline.org,
a site designed to provide consumers with news and easy-to-understand
information on a comprehensive array of lab tests and topics. Larry Kricka,
president of the
American
Association for Clinical Chemistry, says it will provide the public with
reliable information "about the tests ordered by their doctors to
diagnose, treat, or prevent disease." Upon choosing a lab test from the comprehensive list
provided, the viewer will receive understandable explanations about the test,
the testing process, and the meaning of their own lab results. The site is
reviewed by experts and has been produced through a collaboration among six of
the most prestigious societies in the field of clinical chemistry. Dr. David
Sundwall, president of the American Clinical Laboratory Association, described
Lab Tests Online as "one-stop shopping for consumers who want to better
understand the many clinical lab tests that are part of routine health
care."
********************
August, 2001
Last Month's Meeting: For July, we welcomed our new visitors and our loyal regular
members to the 289th meeting of CNSC UOA. Karen wanted to expand our program offering, increase the
depth of subject and provide stimulating information about the current state of
ostomy products. Along with one of
our new members, Michael Cherry, an engineer in product development at
Hollister International, Jeff Bark, the Global Ostomy Product Development
Manager came to talk with us. They
made an exciting presentation dramatizing the commitment Hollister is
continuing to make in manufacturing excellence; research and development;
distribution; customer service; education, and accessibility. Jeff also brought colorful brochures
and a film telling a brief history of Hollister. Jeff reaffirmed the continuing mission in which Hollister is
dedicated so ostomates may have a better quality of life. An interesting fact Jeff shared was
that the U.S. ostomy market continues to expand although the increase seems to
be in temporary ostomies and fortunately not permanent ones. They want us to know that
"Together we make a difference".
Frank Giorno
announced that our Chapter has 285 active members. Jeri Zavlasky, by proxy, reported over six visits for the
past month. We are getting more
requests for visits each month.
Special approbation was given to Gerry Eiseman. Her article published in The Ostomy Quarterly is a big
sensation across the country.
Thank you Gerry for generously sharing your thoughts and feelings with
us.
The winner of our 50/50 was
Roger Lotnick with the consolation prize awarded to one of our regulars, Clif
Southerington. We had a tasty
Hospitality table generously supplied by Karen Budnik, Helen Lande, Joan Loyd,
Jane Michnik, Linda Narcaroti, George Rasof and Clif Southerington.
We have an exciting
calendar for the second half of the year.
A lot of caring and dedication is being expended to have the very best
and the most interesting programs and events for you to attend. Our programs are provided at no charge,
although they are not free. We
have world class presenters who generously give the insight and knowledge
gained over a career so that we may have a better life. They take time away from their families
to visit us. We can say with
confidence, they truly have the best of intentions and pure intent. See you in August,
Renard
Calendar
Meetings for 2001:
The fourth Wednesday of every month.
(except where
highlighted)
August 22
Kim
Kirchherr, MS, RD, LD, CDE a registered dietician from Alexian Brothers Medical
Center will be our featured speaker discussing healthy eating for a long,
active life. Special attention
will be focused upon ostomates. In
addition, Susan Neu, RN will be our ET of the month. Highlights from the UOA Convention will also be featured.
September
12 (Special Date)
Theodore
J. Saclarides, M.D., Associate Professor of Surgery, Head – Section of Colon
& Rectal Surgery, Rush-Presbyterian –St. Luke's Medical Center, Chicago
will be presenting State-of-the-Art information on surgical options. A Q&A session will follow. Helena DeMoss from Mercy Center in
Aurora will be our ET this evening.
October 24 (Ostomy Product Fair)
This
year we will again be featuring exhibits from leading ostomy manufactures and
suppliers. This is one our biggest
events with over 100 in attendance.
November
4 (Visitor's Training)
This
event is scheduled from 9:00 a.m. until 2:00 p.m. in the 10th floor
Dining Room at Lutheran General with speakers from around the country. Because of the incredible amount of planning
and preparation associated with the workshop it is only offered every few
years. We invite neighboring
Chapters to attend.
November
17 (CCFA Conference)
The 7th
annual Patient and Family conference will again be held starting at 9:00 a.m.
at the Stephens Convention Center,
Rosemont. We sponsor a booth and
give a presentation on living with an ostomy.
December
12 (Gala
Holiday Party)
This is
a great time for us to celebrate the season with dinner, songs and friends.
********************
July, 2001
Last
Month’s Meeting: We had the biggest turnout out the year,
about 70 people for our June General Meeting. Our featured speaker was Barabra Saltzman, M.A., L.C.P.C., a
psychotherapist. She has a private
practice in Lincolnwood, and has been associated with the Kenneth Young Center
in Elk Grove Village. Her topic
was “Coping with Chronic Illness”.
She went through the different stages of loss, and the changes that we
can make to finally achieve acceptance.
She amplified the importance we are all lovable even though we are going
through major changes in our lives.
Support groups like ours are very helpful to people in working through
these issues in order to live a happier life. The one phrase she repeated was, “We cannot control change
but we can control our response to it." Many of our members enjoyed her speech, and we hope to have
Dr. Saltzman return. Bari Stiehr,
ET, recently attended an ostomy nursing seminar, and brought in some of the new
appliances. One of them, a
drainable pouch, did not use a separate clip. It had one integrated in the pouch thus making it impossible
for the clip to fall off.
Frank Giorno stated we have 297
active members. Tim Traznik
reported that we raised $3,363 in donations from our annual fundraiser. Jeri Zaslavsky told us about a male
patient who just a few weeks ago was fitted with a urostomy appliance by floor
nurses after having ileostomy surgery.
The regular ET for the hospital was out of town. Fortunately, his daughter retrieved the
phone number for our Chapter Visiting Team. Jeri took the call and recommended another ET nurse from a
different hospital. The ET was
called, and then immediately made a house call to manage this issue. The
patient is now doing quite well.
The point of all this, and the important thing to remember is that an
ostomate may use any ET nurse he/she prefers. We are not required to stay with the ET nurse where we had
our surgery. We have a
choice. Don't settle.
The winner of the 50/50 was Jeri
Zaslavsky. Jeri has been here four
years, and won for the very first time. The consolation prize went to Debra
Dion, who was a first time visitor.
Our Hospitality Table was filled with all kinds of delicious treats
supplied by Diane Breckenridge, Joan Loyd, Jim Madsen, Mike Moneysmith, Linda Narcaroti and Lutheran
General Hospital. A special note
recognizing Jane Michnik, who celebrated her 25th wedding
anniversary tonight, and to Fred Shulak, who commemorates the 45th
anniversary of his surgery.
Our Internet site has been visited
4137 times in 2001. Half by new
visitors and half by repeat visitors. Can I wear
blue jeans after surgery? is the most popular subject. Our next General Meeting will be on
Wednesday, July 25 at 7:00 p.m. Hope
to see you there,
Joan Boden
President's
Letter:
Dear Members,
Our National Convention will begin on August
8. I strongly urge each and every
one of you to seriously consider attending this year's Conference to be held at
the Radisson in St. Paul, MN. In
Chicago, we are fortunate, the last two Conferences have been located
relatively close to us. The previous one in St. Louis and this one in St. Paul. We learn about cutting edge
technologies in ostomy management, as well as hear many excellent presentations
from top medical professionals, and besides, we have lots of smiles. Chicago
has a fun group that goes. This is
a personal invitation to everyone in our Chapter to join us.
As you know, there have been many changes this
year in UOA , e.g. the way decisions are made at national UOA; the Legacy
fundraising programs; challenges in maintaining growth; the success of an
advocacy program to increase the Medicare allowance on supplies. We have a dedicated group of individuals
working tirelessly to achieve the goals we set. We want to continue to bring all the various groups, like
colostomates and ileostomates, together under one umbrella. We want to continue to band together
and stand tall as a strong organization ready to lend emotional support,
education and advocacy for all people going through any of the various ostomy
or continent procedures.
I will not be at the July General Meeting. In my
place, Vice President Karen Budnik will do what I am sure is a fabulous job in
putting on an excellent program. I will be at the 2001Youth Rally in San Diego,
hopefully gaining knowledge into the needs of today's young ostomate. For example, we have found that some do
not to stay active within UOA after 19 years old, the age limit on Youth Rally
attendees. My goal is to bridge
the gap with the teenagers, and make them aware that we in UOA need their
continued participation. We are
evolving groups like 20/40 to
address the special needs and concerns of these adults. Upon my return, I will give you all a
full report of the events from the Youth Rally, and present my assessment of
the success of UOA programs and communications in attending to the needs our
young ostomates.
Dave Rudzin
What's behind a Belly Button
An age old question has finally been
revealed. Dr. Peter Marcello, a
colon and rectal surgeon, indicated that there is mostly nothing but a few
stringy things attached to the inside of a belly button. However, at the last Northwest Medical
Group meeting, a much more interesting theory was put forward. Dr. Carl Stephens indicated that the
belly button was connected to the butt.
Furthermore, if the belly button was unbuttoned, the butt would fall
off.
via
Niagara Frontier Ostomy Association
Carrots Lower Cholesterol
Certain vegetable fibers have the ability to
bind bile and thus lower cholesterol.
Bile acids, which are made from cholesterol, are normally absorbed by
the body, yet not completely. Any
unabsorbed residuals are used by the body to make more cholesterol. Carrots contain calcium pectate, which
is a binding agent for the bile acids.
Its binding action prevents the body from manufacturing additional
cholesterol, thus lowering the cholesterol level. We are being told that two carrots a day may lower cholesterol
10-20 percent. Broccoli and
cabbage may have similar characteristics.
via
South Nevada Town Karaya
********************
June, 2001
Last Month's Meeting:
On a beautiful spring day in Chicago, we began our 27th year
as a Chapter. We were fortunate to
have Ginny Kasten, a Director for UOA, and a resident of Glen Ellyn, install
our Officers for 2001. Ginny also
presented an overview of the key issues and current projects being implemented
at UOA. She was enthusiastic
about reviewing the benefits of
belonging to UOA, such as the advocacy program that effectively lead to the
doubling of the allotment of supplies reimbursed by Medicare in 2000; the
education programs being updated and developed to include cutting edge
technological changes and prevailing sociological trends; the updated, new and
improved, Internet site, etc.
Frank Giorno reported that we continue to have about 300 members on our
Chapter roster. Jeri Zaslavsky
expressed her thanks to all the new volunteers for our visitors program. We have a very active program, and when
we see the generosity of people willing to share their own private and personal
feelings and experiences through that difficult period surrounding surgery, it
is an inspiration to us all. Jeri
told us that she is arranging a Certified Visitors Training Program on
Saturday, November 3. It has been
two years since we had this session, and Jeri is looking forward to putting
this next one together. CCFA is
holding their annual Chicago Convention on Saturday, November 17 in
Rosemont. Over 600 people
attend. This will be our Chapter's
third year as an active participant.
We'll have details about this and our visitors training as these dates
approach.
The lucky winner of
our 50/50 drawing was first timer, Jim Kruger. Jim just had surgery a few weeks earlier, and he looked
great. Our consolation prize was
presented to one of our familiar members, Helen Lande. As always, we had many generous
donations to our Hospitality Table.
A special thank you to Diane Breckenridge, Lois Knaack, Helen Lande,
Mike Moneysmith and Linda Narcaroti for providing treats for us to share.
We have a new
Internet address which makes our Chapter easier to find. It is www.uoachicago.org. The old two addresses we have been
using will still work as well as all current links from other sites. We actually now have three ways to come
to our site.
Renard
President's
Letter:
Dear Members,
Now that the new
board has been installed, I would like to state that we are here for you, our
Chapter's members. We want to present programs that you find interesting,
entertaining and educational.
Please help us by letting us know if there are any specific programs or issues
that you would like addressed, or resources that you may have available for us.
I would also like
to extend the thanks of the Chapter to Ginnie Kasten for donating her time and
talent to perform our Installation Ceremony. Ginnie, we thank you and
appreciate your participation and your inspirational speech.
Now, I would like to
extend a huge thank you to everyone out there, our members, and others on our
mailing list for participating in our Annual Fundraiser. Due to your efforts, we have been able
to raise in excess of $ 3,000, which will go a long way to fund various Chapter
programs. I applaud all of you who contributed, in whatever capacity. All of your efforts are appreciated. I also want to take this opportunity to
thank each and every one of you who have stepped forward in the past to help
our Chapter both financially or as a volunteer. We should tell you more often how much you are appreciated.
Summer is almost upon us, and
our National Conference is only a few weeks away. For information regarding the Conference, please check the
UOA website at www.uoa.org, or call one of the Chapter officers for details. We
encourage all who are able to attend. It will be an educational, enjoyable and
enlightening time, both for those who have attended previously, and for first
timers. This year's Conference is being held in St. Paul, Minnesota. So, for those of you who like shopping,
there is a tour planned for Mall of
the Americas.
As you can see, the UOA Convention wants to
provide something of interest for everyone, which is exactly what we hope to do
in our Chapter. We try to appeal to all ostomates, and discuss openly issues
that effect us. We hope to present the most interesting and relevant. We will continually strive to achieve
higher levels of performance.
Thank you for the support of our good work.
Dave Rudzin
************************
May, 2001
Last Month's Meeting:
Today we celebrated the 26th anniversary of the birth of our
Chapter. Our program included a
presentation by Jennifer Dore, ET, and an ostomy trivia contest hosted by Karen
Budnik. Included were reports by
Frank Giorno that stated we have over 300 dues paying members in the Chapter,
while Jeri Zaslavsky told us about the continued success of our ostomy visitors
program. The Albert C. Sarno award
was presented. Article included
separately.
Jennifer talked about
issues relating to appliance seal.
The three biggest challenges may involve irregularities in the skin contour
around the stoma, the actual design of the manufactured stoma by the surgeon
and the site of the stoma. The
irregularities, like scars, folds or indentations on your skin, may
successfully be managed by using a paste or one of the newer seals, e.g. Eakin
or Hollister seals, to obtain a
smooth, even surface on which to apply the barrier. A smooth surface will translate into a more effective seal
on the pouch. In addition, she
gave us hints on how to achieve excellent wear time, avoid leakage problems and
obtain satisfactory results from our ostomy system by: Only placing the wafer
on dry, clean skin; Emptying the pouch when 1/3 full; Being careful about
aggressively rinsing out a pouch while it is attached to our skin; Changing our
system at least once per week. She
mentioned how perspiration due to summer heat or strenuous exercise may shorten
wear time. Convex wafers may be an
option for those having leakage issues, but this decision should be made
jointly with an ET upon physical examination of the stoma site. As always, Jennifer was available
afterwards for personal consultations.
Karen put together a
little game of ostomy trivia so we may learn about different issues while we
participate as a group. For
instance, one question with an answer provided by Hollister was, "How many
ostomates are in the Chicago Metropolitan area?" Answer: ~ 10,000.
She had prizes for everyone answering questions.
The winner of our
50/50 drawing was Helen Lande with the consolation prize awarded to Mike
Moneysmith. As part of our
celebration, the Chapter provides
a special anniversary cake along with coffee for all to enjoy. In addition, other items for our
Hospitality Table were provided by Frank Giorno, Ron Gould, Gerry Kuntz, Helen
Laude, Mike Moneysmith and Clif Southerington. Next month's meeting begins our 27th year
as a Chapter, and it will include the installation of our officers for
2001.
Renard
Albert C. Sarno Award
By: Renard Narcaroti
Every April, at our Anniversary Celebration,
our Chapter presents the Albert C. Sarno award for outstanding service. This year, I am fortunate to have been
selected for this honor.
Two year's ago, I attended my first
meeting, it was my birthday. I had
been diagnosed with ulcerative colitis.
Like a candle lit at both ends, the UC and drug therapy were burning me up. Surgery was the only viable option.
My wife Linda and I came here to learn
about life with an ileostomy. We
met wonderful, normal, beautiful people, who were all very positive about
having a new life after surgery.
We sat with Dave who carefully demonstrated the use of the
prosthetic. It was smaller than I
had imagined. I scheduled surgery,
had it performed at Rush in June, with relatively minor difficulties and
complications.
The Chapter became an important resource
to me. Of course, there was the
ability to share successes and experiences with others like myself, the outstanding
speakers who share their insights, the ETs etc., but there was more. I always felt better after going to an
event. There was an opportunity to
join the Board; manage our Internet site, travel to St. Louis with a group of
friends and attend a UOA convention; participate in Gladbagger's events; visit
manufacturers; attend focus groups, and represent UOA at CCFA. It has all been great fun.
I am very grateful and surprised to be
presented this award. Two years
ago, I was pretty sure the best of my life was behind me. Today, it has never been better, and I
expect the best yet to come. Thank
you, all my friends, for your support, and the privilege you have granted me to
share an active role in the important work of UOA.
********************
April, 2001
Last Month's Meeting:
Spring is here. Well, a
Chicago spring anyway with temperatures around 15°, cloudy and wet. Our meeting featured encore presentations by Bernie Bailey,
ET, and Earl Sternfeld, RPh.
Bernie discussed the importance of a pre-surgical assessment by an ET in
order to have the optimal
placement for your stoma. She
dramatized a case where a patient had a poorly located stoma resulting in
constant leakage from the prosthetic.
In addition, she had many other complications including issues resulting
from a large weight loss.
Finally, the stoma was
surgically revised, and the management problems stopped. Bernie stated clearly that we are not
to settle for mediocre ostomy quality.
If we have issues, we need to see our doctor and ET for alternatives and
solutions. Our concerns are
important. Expect the best from
your new life.
Earl made an
informative presentation on the benefits of vitamins and herbal remedies. He explained how all people having
ostomy surgery should be on a program of nutritional supplements. As with all medicines, it is important
to avoid self medication. Our
doctors can advise us as to our particular needs. They use blood tests and scientific evaluation to determine
the best vitamins for us, and the methods for taking them. e.g. Some people
with Crohn's disease or with parts of the terminal ileum removed must receive
certain vitamins, like B12, through injection in order to avoid a
deficiency. Earl and Bernie stayed
after the meeting to talk to us and address personal concerns. It is inspiring to think that medical
professionals take time from their personal lives and volunteer to speak at our meetings. Our Chapter is fortunate to have
them. They are a valuable
resource.
The winner of our
50/50 drawing was first timer John Bzdusek. He had surgery six months ago and had just discovered our
Chapter. The consolation prize
went to Karen Budnik. Our
Hospitality table was once again well supplied. A thank you to Joan Loyd, Mike Moneysmith, Linda Narcaroti,
Hank Schneider, Dan Sullivan and Jeri Zaslavsky for their thoughtfulness. We are having a Gladbagger's event on
April 20, and our 26th Anniversary celebration April 25. I hope to see you there.
Renard
..................................
Watch your mail
box! Our annual fund raising
letter will be arriving soon. Of
the $30.00 annual dues each of us pays, $17.50 goes to the National UOA. They publish the Ostomy Quarterly (OQ),
maintain the national office, pay the national staff, and conduct the annual
convention. The remaining $12.50
is used by our chapter.
Our major expense
is the New Outlook which costs over $6000 per year to print and mail. (The news gathering is all
volunteer.) We pay Lutheran
General for the coffee for our meetings.
(They provide the room and the microphone free of charge.) The dues will not cover all our
expenses and let us send delegates to the National Convention and maintain our
quality visiting program.
Each year we ask
each member for an extra donation to our chapter to help us maintain the
quality programs we have undertaken for the benefit of ostomates in our
area. Please give as freely as you
are able.
If you have
friends, neighbors, family members who would like to help sponsor our program,
send their name and address to our president, David Rudzin. He will send them a fund raising
letter.
Our mailing list
is private. These names (your
name) will not end up on any other mailing list as a result of participation in
our chapter and its activities.
Hollister Party on March 24
Hollister hosted a
terrific day for us. Over 150
people attended. Over 30 of our
Chapter members came and the rest were from Wisconsin Chapters. We toured the headquarters building,
got to visit their new Web site, saw machinery that stamps and molds new
products, got free samples of Hollister Ostomy supplies and had an excellent
lunch. Next time they invite us,
be sure you are on the list of those attending!
Friends of Ostomates Worldwide (FOW-USA)
by Joan Loyd, FOW
representative
Do you have unused
ostomy products that are surplus to your needs? Other ostomates can use them. We have a table of supplies at each meeting that are free
for the taking. The remainder are
shipped to Friends of Ostomates Worldwide
(FOW ) where they
are collected and shipped to ostomates in countries with developing economies.
If you live in the
Chicago area, contact Joan Loyd (847-724-7453) and she will try to arrange pick
up of your supplies. If you live
outside the Chicago area, you may send your supplies directly to:
FOW-USA Project
SHARE
[COMMENT1]% Gilchrist
Polymer Center, BLDG. # 3
Mogadore, Ohio
44260-1245
Include your name
and address. You will receive a
Thank You letter which can be used for tax deduction purposes.
Your donated
ostomy supplies are greatly appreciated, regardless of which donation route you
choose.
This month we got
a large donation from Patrick at Mark Drug. Thank you, Patrick!
................................
A Guide to Hospitalization for the Ostomate
Dr. Lindsay Bard,
Chicago, IL, via The Courier (Mission Ostomy Chapter of Tucson) and the GLO
Contact
It is important
that you as an ostomate know you should be handled differently as a
hospitalized patient than non-ostomates.
It's up to you and very important to communicate to medical personnel
who take care of you (including every physician who treats you) that you have
an ostomy and what type. Here are
some rules to help you cover the details.
Rule 1: The
Cardinal Rule
If you feel
something is being done to you that might be harmful, refuse the
procedure. Then explain your
special situation to the personnel, especially the physician.
Rule 2: Supplies
Bring your own
supplies to the hospital. Never
assume the hospital will have the exact pouches of the irrigation systems you
use.
Rule 3: Laxatives
and Irrigations
Follow the points
following concerning laxatives or irrigation practices, according to the type
of ostomy you have. Medical
personnel often assume all stomas are colostomies, but practices vary among
types of ostomies
!
A transverse colostomy cannot be managed by daily
irrigations. The only colostomy
that can be managed by irrigations is the descending or sigmoid colostomy. But sigmoid or low colostomies do not
have to be irrigated in order for them to function; many sigmoid colostomates
prefer letting the stomas work as nature dictates. If you do not irrigate your colostomy, let the fact be known
to your caregivers. If your
physician orders your bowels cleaned, irrigate your own colostomy; do not rely
on others. There is a strong
possibility that those caring for you will not know how to perform an
irrigation.
!
Bring your own irrigation set to the hospital.
!
If you have an ileostomy or urinary diversion ostomy, never
allow a stomal irrigation as a surgical or x-ray preparation.
!
Remember that laxatives or cathartics by mouth can be
troublesome for colostomates. For
ileostomates, they can be disastrous; ileostomates should always refuse them. An ileostomate will have diarrhea, may
become dehydrated and go into electrolyte imbalance. The only prep an ileostomate needs is to stop eating and
drinking by midnight the night before surgery. An IV should be started the night before surgery to prevent
dehydration.
Rule
4: X-Rays
X-rays present special problems for ostomates,
again differently according to ostomy type.
!
Colostomates: Never allow radiology technicians to introduce
barium into your stomas with a rectal tube. It is too large and rigid. Take your irrigation set with you to x-ray and explain to
the technicians that a soft rubber or plastic catheter should be used to enter
the stoma. Put a transparent bag
on before going to x-ray. Have the
technician or yourself place the rubber or plastic catheter into your stoma
through the clear plastic bag.
When enough barium is in your large bowl for the x-ray, the rubber or
plastic catheter can be withdrawn and the open end of the bag closed. The bag will then collect the barium as
it is expelled and can be emptied neatly after the procedure. Once the x-rays are complete, irrigate
normally to clean the remaining barium from your colon. This will prevent having to take
laxatives by mouth after the procedure.
!
An Ileostomate may drink barium for an x-ray procedure, but
never allow anyone to put barium into your ostomy.
!
A Urostomate can have normal GI x-rays without any
problems. Never allow anyone to
put barium in you stoma. At times, dye may be injected through a soft plastic
catheter into a urostomy for retrograde ureter and renal studies, also called
an ileo-loop (loopgram) study. The
same study may be performed on a urostomate with a Koch pouch. The dye will be injected via a large
syringe. This can be a very
painful procedure if the dye is not injected very slowly. Even 50cc injected very rapidly will
create a great deal of pressure in the ureters and kidneys. Remember to request that the injection
be done very slowly.
An ostomate wearing a two-piece system can
remove the pouch just prior to the insertion of the catheter and replace the
pouch after the procedure is completed.
If you wear a one-piece system, bring another with you the x-ray
department to replace the one removed for the procedure. In the event you are incapacitated from
using both hands to replace your ostomy system, have the ostomy nurse paged B or a nurse from your floor B to assist in
replacing the system before you leave the x-ray department.
Rule
5: Instructions
Bring to the hospital two copies of
instructions for changing and irrigating your ostomy. Give one to your nurse for your chart and keep one with your
supplies at bedside. If you bring
supplies that are not disposable, mark them DO NOT DISPOSE, otherwise you may
lose them.
Rule
6: Communicate
Again let me stress that you communicate with
the hospital personnel who take care of you. You will have a better hospitalization and they will better
be able to treat you.
.....................................
Controlling Alkaline Urine
by Gene Galindo
Mr. Galindo, who writes Ostomy Observations@ for Nu-Hope Laboratories, may be reached at P.O. Box
331150, Pacoima, CA 91333-1150 or (818)800-7711. If there is an Ostomy Observation you would like discussed,
let him know.
Odorous urine is usually caused by a high
alkaline condition created by bacteria in the urine. Irrigation of the pouch with a solution of water and vinegar
will help but will not correct alkaline urine coming from the stoma. The more bacteria present in the urine,
the higher and stronger become the alkaline condition and odor. Incidentally, it only takes 20 to 30
minutes for the bacteria to double its count in the pouch.
Indications of alkaline urine: Usually it has a
darker yellow color. Sometimes
calcium deposits can be seen on the appliance or skin.
Additional problems caused by this
condition: 1. Irritated
skin pebbled with what appear to be tiny warts. 2. Closing of stoma opening. 3. Tendency of stoma to bleed easily. 4. Calcium deposits that collect inside
the appliance opposite the opening (these can scratch and cause the stoma to
bleed.)
How to test urine for alkaline level: The best way to
do this is with Nitrazine Paper.
If you do not already have a Nitrazine Test Packet, you can secure this
handy inexpensive Squibb item from your pharmacist. (It is a useful addition to keep in your medicine cabinet or
first aid kit.)
Take a fresh sample of the urine. Do not use the Nitrazine Paper in
direct contact with the stoma or take urine that has been in the pouch. Dip the end of a small strip of the
test paper in the urine and shake off any excess fluid. You will see a change of color occur in
the dipped paper. Compare this
color immediately against the Color Scale of the Paper Dispenser. Avoid color comparison in fluorescent
light B daylight or incandescent light.
When the color of your test sample corresponds
to the purple-blue end of the color Scale (above 6.5pH) the alkaline level is
above normal. This alkaline condition
may indicate a urinary infection.
It is important to check with your doctor. It may very often be only a simple matter of body chemistry
that is easily corrected by a change of diet or an antibiotic prescribed by
your doctor.
Tips for good body chemistry: If a slight
overbalance of alkali is indicated, Vitamin C (ascorbic acid) may do the
job. The dosage depends on how
alkaline the urine is. Two to four
grams of Vitamin C per day may be taken for a week, backing off to about 500
mg. to one gram per day as a regular maintenance dosage.
Adding cranberry juice to your diet may also
help balance the urine chemistry if it is not too heavily alkaline. Sufficient daily intake of water is
always important (in hard water regions distilled water may be recommended).
Treatment for skin irritation: Use soft cloths
to apply soaks with a 50/50 solution of warm water and distilled white
vinegar. Apply gently to affected
area for 10 to 15 minutes. This
will remove calcium deposits and help neutralize any ph imbalance of contacting
urine. Allow warm air to circulate
over the area (sunlight or heat from a 60-watt lamp held about 12 inches from
skin will provide the preferred temperature).
Check for leakage around stoma at appliance
base plate: Make sure that
the appliance opening closely matches the stoma size. If not, re-adjust this opening size.
If a skin irritation continues: Consult your
Enterostomal Therapist and he or she will suggest additional treatment to meet
your individual needs.
Maintain proper appliance hygiene: It is good
hygiene to irrigate the pouch daily with a 50/50 solution of warm water and
distilled white vinegar. A
deodorant may then be used in the pouch.
However, keep in mind that the use of a deodorant B while providing a pleasant scent B should not be misconstrued as a solution to a continuing
urine odor. When the infection or
body chemistry conditions are corrected, a few drops of deodorant can be added
to the pouch daily after irrigation.
There are several excellent deodorants
formulated especially for ostomy use.
You can select the one you find most effective and pleasing to you.
These simple health habits and hygiene hints
will keep you fresh and worry free.
..............................
Better
Care for Less
from The Health Promotion and Wellness
Newsletter, American Health Products via Karen Budnik
An aging population and a double digit
increase in prescription are just two reasons the cost of health care continues
to rise. But you don't have to
take it lying down. Here's how to
control your health care spending and still get great care:
1.
Find a primary care doctor if you don't already have one. A primary care physician can save you
money in the long run by getting to know you as well as your family's medical
history, ultimately delivering better diagnoses and treatment.
2.
Handle minor problems by calling your doctor for self-care advice. I may save you a visit, since many
common symptoms can be handled over the phone (or in some cases, by e-mail).
3.
Save 30 to 50 percent off brand name drugs by asking your doctor or
pharmacist about availability of generic versions for any medicines you take.
4.
Get critical screenings for free by taking advantage of blood pressure
and cholesterol testing at local health fairs. Note that the automated machines typically used give
ballpark figures only. Doctors= offices generally perform blood pressure readings for free
also.
5.
Follow your doctor's directions to the letter. A large percentage of people readmitted to hospitals soon
after discharge come back only because they did not follow doctor's
orders. Be sure you understand
what the orders are ...ask questions
...know why you are taking any prescribed drugs ...ask your pharmacist
for a printout of side effects.
AND DON'T FORGET...
Quit Smoking ... Drink less Alcohol ... Eat
Right ... Exercise ... Wear Safety Belts
These moves cost you little while adding years
to your life. Now that's a
bargain!
*************************
March, 2001
Last Month's Meeting:
We had a nice turnout for our February General Meeting. There were plenty of new faces along
with friendly familiar ones. At
each meeting, we feature an ET nursing professional who always gives us some
up-to-date information on ostomy management. It was an honor to have Connie
Kelly, RN, MS, as our WOCN for the evening. She asked and answered common questions all people with
ostomies should know. e.g. If you
are going to a doctor or hospital, should you bring your own supplies or expect
them to have supplies available?
Of course, the prudent action is to bring ample supplies of your
own. She gave us some other new
tips and was available for personal consultation as well.
Our featured speaker
was Joan Loyd, Secretary of Friends of Ostomates Worldwide, and our past
President. She presented a slide
show giving an overview of the good work done by FOW. Joan dramatized the challenges ostomates have in poorer
areas of the world as well as the political and logistical issues they must
resolve every day. One remarkable
situation she discussed was the environment in the United States. There are poor areas in America that
are in serious need of supplies, but governmental policies and bureaucratic
regulations have made it impossible to help these poor people. Some of the biggest challenges FOW
faces are the strange regulations each country legislates regarding the
acceptance of donated ostomy supplies.
Joan's presentation made the issues faced by FOW in promoting its
missions most enlightening for us.
On a positive note, our Chapter is the fourth largest donor of supplies
to FOW. This is quite an
accomplishment, and special credit is due to the many people who have donated
unneeded, new supplies to our Chapter.
The winner of
our 50/50 drawing was Lois Knack with the consolation prize going to Bob
Mann. Our Hospitality table was
well supplied by many people who donated delicacies, and as always we thank
their generosity. Our Chapter is a
completely volunteer ostomy support group. We only exist because of our members. Those who sacrifice time, share talents
and donate resources to assist each of us celebrate our new life.
Renard
Our next general meeting will be on Wednesday,
March 28, with fellowship beginning at 7:00pm and the meeting at 7:30pm. As
always, snacks are appreciated!
This month we are
fortunate to have our Walgreen's pharmacist, Earl Sternfeld, return for a most
informative discussion on herbal remedies and their interaction with prescription
drugs. Our ET of the month will be Bernie Bailey of Resurrection Hospital. We
will celebrate our 26th chapter anniversary at our April meeting and the
installation of officers will take place at our May meeting. Further details
will follow in next month's newsletter.
.............................
Hollister Party
on March 24
Hollister has invited us to an open house at their facility
in Libertyville, Illinois from 10:00 a.m. until 2 p.m. on Saturday, March
24. If there are enough people to
justify a bus, Hollister has agreed to pick up our members at one specific
location. (We are thinking of Lutheran General Hospital, since everyone knows
how to get there, and parking is free in the lot across the street). The bus would leave Lutheran General in
time to be at Hollister at 10:00 a.m.
It will depart Libertyville at 2:00 p.m. Hollister will have displays of their products, a set up for
viewing their new web site, and conduct a tours of their headquarters
facility. A courtesy lunch will be
provided. Members of the
Milwaukee, Wisconsin Chapter, led by Tom Huber & Norm Kelly will also be
there. This is a wonderful
opportunity to get to know more ostomates, as well as getting better acquainted
with Hollister. We have about 30
people signed up as this newsletter goes to press. If you want on this fun bandwagon, phone Dave Rudzin
(312-466-3683) by March 12. If you
will attend but prefer to drive your own car, please let Dave know that, too.
David Rudzin, President Chicago's North Suburban Chapter,
312-466-3683
Rudyman22@aol.com
Now hear this!
If you're a C, you're due!
Watch your mail
for a dues notice from UOA. If you
receive one, you're a C! A
C-quarter member, that is.
C-quarter member's
dues are due before April 15. This
is your last newsletter before the deadline. Send $30 dues to:
Chicago's North
Suburban Chapter UOA
c/o Frank Giorno,
Membership Chairman
7605 W. Fullerton
Elmwood Park, IL
60635
....................................................
Friends of Ostomates Worldwide (FOW-USA)
by Joan Loyd, FOW
representative
Subject: Recycling
Ostomates often
change the type of appliances that they wear, sometimes resulting in a surplus
of ostomy supplies that may never be used again. Some ostomates are fortunate
enough to be able to be reconnected and no longer need appliances. If you or a
loved one find yourself with an unused supply of clean, new ostomy supplies
that have been properly stored to protect their usefulness, don't throw them
away! Donate them to our Chapter. Donations
to our Chapter are used locally if possible. Remaining supplies are sent to Friends of Ostomates
Worldwide. They are then distributed to ostomates in third world countries who
do not have access to the modern ostomy appliances that we have here in the
United States. Don't take your pouches for granted, and please, never throw
away supplies you no longer need! If you live in the Chicago area, contact Joan
Loyd (847-724-7453) and she will try to arrange pick up of your supplies. If you live outside the Chicago area,
you may send your supplies directly to:
FOW-USA Project
SHARE
Gilchrist Polymer
Center, BLDG. # 3
Mogadore, Ohio
442-1245
................................
LOOKING' GOOD!
It's hard to
straighten a back that has endured compression fractures as a
result of
Osteoporosis. These are painless, but they result in loss of
height, a
thickening waistline and that "round shouldered" look. Age is
usually the culprit,
but years of steroid treatment, and loss of estrogen
also contribute to
Osteoporosis. And although it is usually not very
painful, it is a
fact of life, especially for women. We can't change it, but
we can fool Mother
Nature. Here are a few tricks:
-- Wear slacks
with elastic waistlines (one hip may be higher than the
other).
-- Raglan sleeves,
dropped shoulders and dolman sleeves are most attractive.
-- Jewel
necklines, loose cowl collars and V-necks make your neck appear
longer.
-- Clothing that
is loose, straight or just slightly fitted is best.
-- Wear dresses
with an empire (raised) waist, a dropped waist, or an A-line
cut.
-- Long scarves
highlight your face.
-- Add small
shoulder pads to compensate for sloping shoulders.
-- Use a backpack
instead of a shoulder bag. This distributes weight more
evenly and leaves
your hands free for balance. Also, shoulder bags emphasize
your shoulders and
can even cause pain!
-- Here is a tip
if your sloping shoulder(s) cause your bra strap to slip.
Sew a short length
of elastic from the back of the bra strap to a spot near
the hooks or eyes.
Make sure the elastic is taut enough to keep the strap
from slipping, but
is not uncomfortable. It works for me!
Look good - -
feel good!!!
Everything I need to know about life, I learned from Noah's
Ark...
One: Don't miss
the boat.
Two: Remember
that we are all in the same boat.
Three: Plan
ahead. It wasn't raining when Noah built the Ark.
Four: Stay fit.
When you're 600 years old, someone may ask you to do something really big.
Five: Don't
listen to critics; just get on with the job that needs to be done.
Six: Build your
future on high ground.
Seven: For
safety's sake, travel in pairs.
Eight: Speed
isn't always an advantage. The snails were on board with the cheetahs in time.
Nine: When you're
stressed, float a while.
Ten: Remember,
the Ark was built by amateurs; the Titanic by professionals.
Eleven: No matter
the storm, when you are with God, there's always a rainbow waiting.
********************
February, 2001
Last Month's
Meeting: The weather was
co-operative for us to have our first General Meeting of the new year. Our program in January was the annual
panel discussion. Like always, we
had a wonderful group of people.
They told us about their health
histories which lead to ostomy surgery, as well as the challenges and
successes of living their new life.
This was a moving presentation.
Listening to our panel re-live experiences, and share intimate details
about their lives made this meeting emotionally uplifting. UOA may be the only place where we have
the opportunity to hear other people talk about ostomy surgery in a completely
open and supportive environment.
It reminds us how fortunate we are to have chosen our new life over
disease and sickness. Our
presenters were: Joan Bodden,
ileostomy; Kim Eberhardt, continent urostomy; Rhoda Gordon, colostomy; and Tim
Traznik, ileostomy.
The
lucky winner of our 50/50 drawing was past president, Gerry Kuntz. The consolation prize was awarded to
first timer, Ann Stipulin, who was there with her husband who has ostomy
surgery pending. Our
hospitality table was generously supplied with bakery goods provided by Diane
Breckenridge, Frayda Dean, Gerry Kuntz and Linda Narcaroti.
Renard
President's Letter:
MY TWO MOST FAVORITE WORDS
As the President of your chapter, there are many responsibilities
and duties that need to be carried out at a chapter level, state level and
National level. To carry out all of these would be totally impossible if not
for two words :
|
VOLUNTEER |
SUPPORT |
|
Def. A person who gives his services of his own free will |
Def. To bear the weight of from below To prevent from falling To
withstand A person who provides aid |
If we now combine these two words we then define who we are: Our chapter and the United Ostomy
Association as a whole are made up of VOLUNTEERS who SUPPORT other people.
This support comes from people who give of their time and effort in
order to discuss with new ostomates or potential ostomates the impact their
surgery will have on them.
Within our chapter, and the organization as a whole, we have a
group of people who give of their time and provide aid to prevent others from
falling, to prevent others from bearing the total weight of their new look by
themselves.
We share our knowledge, our experience and our tips that we have
accumulated over the years. We lend our support to those who may be just
learning about this for the first time. We volunteer our time in order to
educate others as to the daily expectations that our "new look" will
bring.
I ask each and every one of us to do is to define what these terms
mean to us and then apply those to better our chapter. If your idea of
volunteering is to help plan a program, or to make phone calls, we WELCOME your
assistance. If your idea of support is to contribute financially to the chapter
or to be a visitor, that is WONDERFUL as well.
The bottom line here is that we all, each and every one of us
participate in these endeavors-VOLUNTEER & SUPPORT.
We welcome YOUR participation and look forward to INCREASING our
VOLUNTEERS and our SUPPORT !!!
Dave Rudzin
.............................
Ostomy Surgery and Depression
The gray cold days of winter can be a time of depression. Ostomy surgery leaves many people
feeling depressed no matter what the season. This article from a previous New Outlook reminds us to Abe easy on ourselves, and
also reminds us that there is help out there. If you feel discouraged and hopeless, be sure to discuss it
with your doctor.
Reprinted
from The New Outlook, September
1992. Sleeplessness, loss of
appetite, feelings of guilt or worthlessness, irritability and a desire to be
alone, as well as a loss of sexual desire, are some of the symptoms of
depression. It can be triggered by
the inability (at this time) to participate in normal daily pleasurable
activities, or by a sense of helplessness and lack of control over your
body. Depression also can be
caused by medications, stress, malnutrition, anesthesia, or metabolic
imbalance. People who base their
self-esteem on their physical appearance, their independence, their always in
control - take charge character, or their Good Samaritan behavior (always
helper or solver), have a harder time dealing with illness, their ostomy, their
lack of control over their bodies and their need to depend on others for help,
even if only temporarily.
Constantly tired from efforts to cope with daily household or work
routines, while learning to adapt to physical requirements of this
unpredictable new addition to your body, leaves little energy for enjoyment of
leisure activities or romantic involvement. It takes us some time to return to our normal
lifestyle. So relax - do what you
are capable of doing at this time, and don't try to rush things.
Most people need a few months before they feel secure about being
accepted. Join the crowd! You are not alone. We all go through this.
Give
yourself a year for a good recovery and if it takes less time, consider
yourself a very lucky person.
Meanwhile do what you have to do, in whatever way you are capable of
doing it, but don't give more than a passing thought to the things you can't do
right now.
You will
have to take some short cuts, do some improvising, and indulge in some healthy
neglect. Don't be bashful about
asking for, and accepting help.
Accepting help can be harder than giving help, especially if your role
has always been that of helper.
Some people conceal their ostomy from their spouse, families or lovers
because they fear rejection, feel shame or embarrassment, are modest, or have
noticed evidence of disgust. This
results in a feeling of isolation, depression, and chronic anxiety.
If you feel
yourself in this rut, get in touch with your doctor B right away! There is help for you. Life has been given to you anew. Don't let depression spoil it. Depression is a treatable
condition. Get whatever help you
may need to enhance the quality of the life that is yours to live.
.....................
New Medicare Allotments
By Gerry Eiseman (by way of Convatec Better Together Club@
Medicare has increased the number of items you can use per month
without the
need for additional documentation for medical justification. The
monthly utilization guidelines have the following changes:
*Drainable pouches have increased from up to 10 to up to 20/month
*Urinary pouches have increased from up to 10 up to 20/month
*Closed pouches have increased from up to 31 to up to 60/month
*Irrigation sleeves have increased from 1 to up to 4/month
*Solid skin barriers and skin barriers with flange have increased
from up to 10 to 20/month *You can now also use one ostomy belt per month
These changes took place on October 1, 2000. These changes may
relieve the pressure to wear the appliance for "one more day@. A doctor's letter is needed ONLY if you
must exceed the above guidelines.
From Gerry Eiseman, a quote from Alexander Humboldt (German
scientist and explorer):
"I am more and
more convinced that our happiness or unhappiness depends far more on the way we
meet the events of life, than on the nature of those events themselves."
THINGS I WISH I'D KNOWN BEFORE I WENT OUT INTO THE WORLD
1. Any and all compliments can be handled by simply saying
"Why, thank you!"
2. --- And it helps if you really mean it.
3. In every endeavor, some people are working backstage, some are
playing in the orchestra, some are on stage singing, some are in the audience
as critics and some are there to applaud.
Know who you are and where you are.
4. When baking, follow directions. When cooking, go by your own
taste.
5. Never continue dating anyone who is rude to the waiter and
doesn't like dogs/cats.
6. You need only two tools. WD-40 and duct tape. If it doesn't move
and it should, use WD-40. If it moves and shouldn't, use the tape.
7. The five most essential words for a healthy, vital relationship:
"I apologize" and "You are right."
....................
November 2000
President’s Letter:
Well, my friends, we are now in the
first stages of our Annual Holiday Season.
We all know that, because the
"official" Holiday Season begins when the last piece of Halloween
candy has been eaten and when many of us realized that we forgot to reset the
clocks on Sunday morning.
These changes in time and in our
schedules disrupt our Circadian rhythm. This is the rhythm we all live
with: Our Internal Metronomes. Disrupting a person's rhythm or
schedule can be a major inconvenience and as an ostomate, it can have
major impacts.
We are now on a different schedule
than our body is. We know how long that dinner will take to pass through, BUT
our clock says we should sleep till 8 am. Our bodies tell us we better be up by
7 am, or we will have problems. From a mental and visual perspective, we know
now that we leave for work while the sun is up and come home well after it
sets.
We as ostomates are in a better
position to adjust to these changes. Just remember over the course of our
lives, WE ADJUSTED to our illnesses or conditions. Then we had surgery or
surgeries and we AGAIN ADJUSTED to that.
We began to adjust physically and
after a while most of us began to adjust mentally and psychologically as well.
We are ADAPTABLE and so are our bodies. And we ALL know now that it will
take a LOT more than a mere time change to disrupt OUR LIVES.
On behalf of the entire Board of
Directors, I would like to wish everyone a very Happy and Healthy Holiday
Season.
No matter what Holiday you
celebrate, may it be one of Joy & Happiness to you and your family and may
the upcoming year of 2001 be a VERY GOOD kind of "Odyssey"
through space and time for us all !!!
Looking forward to see you ALL at
our Annual Holiday Party on Tuesday, Dec. 5 beginning at 6:30 p.m.
Dave Rudzin
.....................................
President’s
Message
August 2000
Dear Fellow Ostomates,
This month of August that will be a busy time for many of us. From Aug. 15-20,
the United Ostomy Association is having their Annual
Convention in St. Louis and we will represent you there. We are there to have
fun and to learn many things, but one of the most important things is to vote
on the state of affairs that exist and the program that will be supported in
the future by the UOA.
I am happy
to say, that I am VERY PROUD of our chapter. Unless my math fails me, our
chapter will have the LARGEST CONTINGENCY in the country of representatives in
St. Louis, and even though we are one of the largest chapters in the nation, we
will have representatives in DOUBLE FIGURES THERE !!! I believe that is UNHEARD
of by any UOA standards, and I think it shows the dedication, commitment and
determination of OUR group. I will be HONORED and PROUD to lead our delegation
down to St. Louis.
This year
will be the first time many of our people have attended a convention. For
others it will be the first time they will be a delegate. Being
represented at convention means sharing a common bond with THOUSANDS of people
all over the country. Being a delegate means YOU have the obligation and duty
to listen to what is presented and cast your vote for the future direction of
our organization.
At last
years conference, I must admit, they painted a bleak picture of the future,
both financially and in membership.
Due to hard
work by many people in each and every chapter INCLUDING ours, the
picture has become
"rosier". Are we out of the woods yet? NO, but I feel
with the kind of representation WE have going down to St. Louis, representing
YOUR needs, our chapter will take a LEAD role in formulating the direction of
UOA in the future.
I would like
to personally thank ALL the officers, former officers, and chapter members who
have committed to going to St. Louis. Your commitment NEVER goes unnoticed and
I want to honor you ALL and say THANKS for playing such an active role. YOU ALL
are what UOA represents and I'm grateful to each and every one of you.
Dave Rudzin, President
President’s
Message
June 2000
Dear Friends and
Fellow Ostomates,
This will
be my last message to you as President. At our May meeting we
elect a new
slate of officers. Endings and new beginnings -- that is the
ostomate story,
isn’t it?
When
ulcerative colitis or Crohn’s disease has kept us sick and
uncomfortable,
surgery can be a welcome relief. When we discover
cancer or
experience trauma, ostomy takes us by surprise, and we may
rant and rave
and resent the change.
So it is
with leadership. Sometimes we are unhappy with the power
structure and
welcome a change. Sometimes we are comfortable with
status quo and
balk and protest at adjusting to something new.
All the
while, in the deepest parts of our hearts, we know that ostomy
surgery has
given us life B a second chance at life, a better quality of life.
Change resulted
in personal growth and new hope for the future.
New
officers do that for our chapter. New officers bring new ideas, new
skills.
New officers bring new approaches and new ways of doing things.
Whether you
were miserable or comfortable in the past, give the new
leadership your
enthusiastic support. Growth and new life for our Chapter
lie
ahead. We have adjusted to many changes in our personal
lives. Let
us welcome this
change of officers and the hope it brings for the future of
our Chapter.
Your friend
and fellow ostomate,
Joan Loyd
Dick
Dorman, past president of our Chapter is also a supportive member
of the Jackson,
Mississippi Chapter. He found this in their newsletter and
wants to share
it with you.
>From the
Internet by way of Inside Out, Winnipeg Ostomy Assoc. and
Ostomy Assoc. of
Jackson, Mississippi. Author unknown.
DANCE LIKE
NO ONE’S WATCHING
We convince
ourselves that life will be better after we get married, have a
baby, then
another. Then we get frustrated that the kids aren’t old enough
and we’ll be
more content when they are. After that, we’re frustrated that
we have
teenagers to deal with ... we will certainly be happy when they’re
out of that
stage.
We tell
ourselves that our life will be better, more complete, when our
spouse gets
his/her act together, when we get a nicer car, are able to go on
a real vacation,
when we retire. The truth is, there’s no better time to be
happy than right
now. If not now, when?
Your life
will always be filled with challenges. It’s best to admit this to
yourself.
Know this and decide to be happy anyway. One of my favorite
quotes comes
from Alfred D. Souza. He said, “For a long time, it had
seemed to me
that life was always about to begin. Real life. But there was
always some
obstacle in the way, something to get through, time to be
served, some
unfinished business, a debt to be paid. Only then, would life
begin. At
last it dawned on me that these obstacles were my life.”
This
perspective has helped me to see that there is no way to happiness.
Happiness is the
way. So, treasure every moment that you have and
treasure it more
because you shared it with someone special, special
enough to share
your time with and remember that time waits for no one.
Stop
waiting until you’re finished with school, until you go back to school,
until you loose
ten pounds, until you gain ten pounds, until you have kids,
until your kids
leave the house, until you start work, until you retire, until
you get married,
until you get divorced ,until you get a new home or a new
car or until
your car and home are paid for, until spring, until summer, until
fall, until
winter, until the first or the fifteenth, until your song comes on,
until you’ve had
a drink, until you’ve sobered up, until you die, until you
are born again B
to decide that there is no better time than right now to be
happy.
Happiness
is a journey, not a destination. So: “WORK LIKE YOU
DON’T NEED
MONEY, LOVE LIKE YOU’VE NEVER BEEN HURT,
AND DANCE LIKE
NO ONE’S WATCHING!”
..........................
A farewell note
from Joan
These past
three years as your President have been rewarding to me. I
have enjoyed
representing you at our national convention. At these
conventions I
learned a lot and met marvelous people from all over the
world who are
ostomates.
I have enjoyed
our meetings. You are attentive, enthusiastic and
welcoming.
You truly are a support group. You support each other and
you have
supported me.
I have
enjoyed working with the dedicated, hard-working volunteers who
make our chapter
one of the best in the nation. I cannot name them all --
that would take
all the space in this entire newsletter.
I have
enjoyed being your President, and I thank you sincerely for that
privilege.
Joan Loyd
.........................
April, 2000 New
Outlook
President’s Message
Dear Friends and
Fellow Ostomates,
May I share with
you a paragraph from the book "The Road Less Traveled and Beyond" by
M. Scott Peck, M. D., a psychiatrist and author of many best selling books:
"The English poet, Alfred, Lord Tennyson wrote: "A lie which
is half a truth is ever the blackest of lies"
"The biggest lie promoted by various of our social institution ,
and this in some ways plays into our human nature and our sin of laziness, is
that we’re here to be happy all the time. We’re bombarded by business, the
media, and the church with the lie that we’re here to be happy, fulfilled, and
comfortable. For motives of profit, the lies of materialism and advertising
suggest that if we’re not happy, comfortable, and fulfilled, we must be eating
the wrong cereal or driving the wrong car. Or that we must not have it right
with God. How wicked! The truth is that our finest moments, more often than not
occur precisely when we are uncomfortable, when we’re not feeling happy or
fulfilled, when we're struggling and searching.
As ostomates, we
know the feeling of being a little uncomfortable, of being a little unhappy, of
struggling and searching to fit into a society that deems us abnormal.
We also know we
are the same persons we were before surgery, just as smart, just as
compassionate, just as funny. We know that little round opening has nothing to
do with who we really are.
If we can truly
learn this lesson, we can truly live. We can evaluate all issues of life on
merit, disregarding what society says is "normal". Knowing society is
wrong about us gives us enormous power, power to challenge the norms and stick
to judgments that are right for us.
Our surgery may
well have been one of our finest moments.
Your friend and
fellow ostomate,
Joan Loyd
******************************************************************************
March, 2000
President's
Message
Dear Friends and Fellow Ostomates,
As I write, it is 70 degrees outside. A record for February
in our area. Crocuses are blooming.
Daffodils are up and budding. Life is
renewing itself again!
How common in life are cycles: A cycle of energy, a cycle of
lethargy. A cycle of work, a cycle of leisure. A cycle of tumult, a cycle of
quiet. A cycle of growth, a cycle of decline. A cycle of health, a cycle of
sickness.
How human of us to look at the pleasant cycles and think
that is the way life is supposed to be -- all the time. When the cycle turns
difficult, we call it a bad time. We wonder why bad things are happening to us.
We may become angry and look for someone to blame. We may wonder if we are
being
punished.
At our meeting last month, ET Rhonda Kravitz talked about
using gratitude to re-frame our thinking. When we encounter a harsh cycle,
gratitude can help us focus on the positives. Rhonda asked us to name good
things that have come as a result of our ostomies, good things for which we are
grateful.
I challenge you to do just that! Write down five things you
are grateful for in your cycle of surgery, then be positive about them.
Where you look determines what you see!
Your friend and fellow ostomate,
Joan Loyd
............................................
FOW (Friends of Ostomates Worldwide)
FOW stands for Friends of Ostomates
Worldwide. This is a sub-group of the national UOA that organized to collect
and ship ostomy products and supplies to third world countries. All supplies
shipped are donated. The donated supplies you bring to our meetings, if not
claimed by one of our members, are boxed and shipped to Akron, Ohio.
There they are collected, re-packed and shipped overseas to areas where there
is a medical contact (so proper use may be made of the products).
Our chapter has
received Thank You letters from FOW (Friends of Ostomates Worldwide) for the
last three large boxes of supplies we shipped them - two in January, and one in
February.
Membership dues to
FOW are used to pay for shipping overseas. As a chapter we pay membership dues
of $150 per year to FOW ($1 per member with a $150 maximum). Individual
memberships are also available. If you are interested in being a part of this
worthwhile cause, contact Joan Loyd.
If you have new,
unused ostomy supplies that are no longer of value to you (changed size, type
of appliance, etc.) you may either bring them to a meeting, or you can ship
them directly to FOW.
The address for the collection of
ostomy supplies is:
FOW Project SHARE
c/o AWS Logistics
1501 Exeter Rd.
Akron, Ohio 44306
........................
......................
United Ostomy Association Chicago North
Suburban Chapter
February, 2000 New Outlook
President's
Message
Dear Friends and Fellow Ostomates,
February is the
month of hearts and flowers. Another month in which advertisements try to
convince us that buying things, receiving things brings happiness.
If we buy into this,
we are guaranteed unhappiness. We will look at what we have, compare it to what
someone else has or to what might be possible to have and feel deprived and
unhappy.
February is also the
month of Presidents, one of whom said, "Ask not what your country can do
for you. Ask, rather, what you can do for your country."
This approach
changes attitude. Ask not what life can give you. Ask, rather, what you can
give to life.
Waiting for love to
come to you will bring long, lonely days. Loving those around you every day,
greeting them with joyous appreciation, leaving in your path random acts of
kindness will change your world, and is guaranteed to make you happy.
This month of hearts
and flowers, give bouquets of kind and loving words, give sweet acts of
consideration. Tell those around you how much you love them. Tell them how much
you enjoy and appreciate the common everyday things you do together.
Another President
said, "Most people are just about as happy as they make up their minds to
be." Another way of saying attitude determines happiness. Looking at life
with eyes of gratitude changes attitude.
As ostomates, we can
feel that life has given us a raw deal, be angry and feel entitled.
Alternately, and it may take some effort, we can focus with gratitude on the
good things -- the pleasures and gifts of life. We can be just about as happy
as we make up our minds to be.
My
Valentine to you is this anonymous verse:
Yesterday
is history
Today is a
gift
It's called
The Present!
Live and savor
every moment
Life is not
a dress rehearsal!
Your
friend and fellow ostomate,
Joan Loyd
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